Status:
RECRUITING
Breaking Silence Through Story: A Narrative Medicine Intervention for Parents of Children With Urogenital Conditions
Lead Sponsor:
Sarah Schlegel
Collaborating Sponsors:
Harvard Catalyst Pilot Grant
Conditions:
DSD
Hypospadias
Eligibility:
All Genders
18+ years
Phase:
NA
Brief Summary
The goal of this clinical trial is to learn whether a journaling intervention can reduce stress and anxiety in parents of children with urogenital conditions (such as differences of sex development an...
Eligibility Criteria
Inclusion
- Parent or legal guardian of a child (age 0-17 years) diagnosed with a urogenital condition (differences of sex development and/or hypospadias)
- Able to read and understand English
- Child receives care at Boston Children's Hospital
- Willing to complete a guided journaling intervention (through writing or dictation) over a period of approximately 5 weeks
- Willing to participate in a 45 minute follow-up interview
- Able to provide informed consent
Exclusion
- Parent/guardian with severe psychiatric disorder that would interfere with participation as determined by referring physician
- Parent/guardian unable to complete either written journaling activities or dictation
- Inability to provide informed consent
Key Trial Info
Start Date :
October 10 2025
Trial Type :
INTERVENTIONAL
Allocation :
ESTIMATED
End Date :
May 1 2026
Estimated Enrollment :
20 Patients enrolled
Trial Details
Trial ID
NCT06989593
Start Date
October 10 2025
End Date
May 1 2026
Last Update
October 23 2025
Active Locations (1)
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1
Boston Children's Hospital
Boston, Massachusetts, United States, 02115