Status:

SUSPENDED

BE.Amycon Registry UZ Leuven

Lead Sponsor:

Universitaire Ziekenhuizen KU Leuven

Collaborating Sponsors:

Vlaams Instituut voor Biotechnologie

Conditions:

Amyloidosis

Eligibility:

All Genders

18+ years

Brief Summary

The goal of this observational study is to establish database with (limited) personal and health data of patients diagnosed with amyloidosis (any subtype) in order to get better insights on the diseas...

Detailed Description

With the support of VIB Grand Challenges Program, this project aims to establish the BElgian AMYloidosis CONsortium (BE.AMYCON) by joining forces of VIB researchers, a state-of-the-art diagnostic plat...

Eligibility Criteria

Inclusion

  • Age 18 years or older
  • Provide consent and sign informed consent form
  • Confirmed diagnosis of amyloidosis (any subtype), systemic and/or localised
  • Newly diagnosed or in follow-up during the study time-frame (1 JUN 2025 until 31 DEC 2027)

Exclusion

  • Not able to provide informed consent
  • Not willing to sign informed consent

Key Trial Info

Start Date :

September 1 2025

Trial Type :

OBSERVATIONAL

Allocation :

ESTIMATED

End Date :

June 1 2028

Estimated Enrollment :

550 Patients enrolled

Trial Details

Trial ID

NCT06998355

Start Date

September 1 2025

End Date

June 1 2028

Last Update

August 28 2025

Active Locations (1)

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UZ Leuven Gasthuisberg

Leuven, Belgium, 3000