Actively Recruiting
Access to Genetic Testing in Underserved Patients With Cancer
Led by University of Southern California · Updated on 2026-03-18
800
Participants Needed
2
Research Sites
261 weeks
Total Duration
On this page
Sponsors
U
University of Southern California
Lead Sponsor
N
National Cancer Institute (NCI)
Collaborating Sponsor
AI-Summary
What this Trial Is About
This study compares the experiences of people who receive information about genetic testing from a computer-generated character to patients who receive information from a human genetics healthcare provider. Patients with cancer are increasingly recommended for genetic testing as standard of care. Multiple factors contribute to low usage of genetic testing but for many patients the lack of access to genetic counseling and testing is an important and flexible factor. Lack of access is especially relevant to racial/ethnic minority patients and those living in non-metropolitan rural settings who are frequently cared for at safety-net hospitals with limited genetics services. Alternative delivery models are necessary to improve rates of access to genetic testing in patients with cancer. Health information technology is under used by genetics providers. A patient-facing relational agent (PERLA) will provide pre-test genetics education in both English and Spanish across two clinical settings to facilitate more timely access to genetic testing. Using the PERLA intervention may help researchers learn different ways to provide education about genetic testing to patients with cancer compared to usual care.
CONDITIONS
Official Title
Access to Genetic Testing in Underserved Patients With Cancer
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Age > 18 years old
- Diagnosed with at least one of the following cancers: epithelial ovarian cancer, exocrine pancreatic cancer, metastatic or high or very high-risk prostate cancer, breast cancer at or before age 50, bilateral breast cancer, triple negative breast cancer, or male breast cancer
- Healthcare provider who treats patients with any of the above types of cancer
- Able to read and write in English or Spanish
- Able to provide informed consent
You will not qualify if you...
- Patients who cannot provide informed consent
- Patients who cannot see, read, or write
- Patients who have the cancer and clinical characteristics defined in the inclusion criteria but do not speak English or Spanish
- Patients with none of the listed cancer diagnoses and clinical characteristics
- Healthcare providers who do not treat cancer patients
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 2 locations
1
USC / Norris Comprehensive Cancer Center
Los Angeles, California, United States, 90033
Actively Recruiting
2
University of Rochester
Rochester, New York, United States, 14642
Actively Recruiting
Research Team
C
Charite Ricker, MS
CONTACT
How is the study designed?
Study Type
INTERVENTIONAL
Masking
NONE
Allocation
RANDOMIZED
Model
PARALLEL
Primary Purpose
HEALTH_SERVICES_RESEARCH
Number of Arms
2
Not the Right Trial for You?
Explore thousands of other clinical trials that might be a better match.
Sign up to get personalized trial recommendations delivered to your inbox.
Already have an account? Log in here