Actively Recruiting
Adapted Physical Activity Program (APA) for Effort Rehabilitation of Children and Teenagers With Marfan Syndrome
Led by University Hospital, Toulouse · Updated on 2026-03-03
30
Participants Needed
1
Research Sites
283 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
This research study aims to evaluate the effect of a 6-month adapted physical activity program (APA) on the endurance capacities (evaluated as the maximum oxygen consumption \[VO2 peak\] on a cardiopulmonary exercise test) of children and adolescents with Marfan syndrome or related.
CONDITIONS
Official Title
Adapted Physical Activity Program (APA) for Effort Rehabilitation of Children and Teenagers With Marfan Syndrome
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Genetically confirmed Marfan syndrome or related syndrome
- Girl or boy aged 7 to 17
- Informed and written consent signed by at least one of the two holders of parental authority
- Patient affiliated to a social security scheme or equivalent
You will not qualify if you...
- Severe aortic dilation (aortic diameter > 45 mm)
- Left ventricular failure (left ventricular ejection fraction <45%)
- Severe mitral leakage grade 3 or higher
- Pregnancy
AI-Screening
AI-Powered Screening
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Trial Site Locations
Total: 1 location
1
CHU Toulouse
Toulouse, France
Actively Recruiting
Research Team
T
Thomas EDOUARD, MD
CONTACT
F
Fernanda BAJANCA
CONTACT
How is the study designed?
Study Type
INTERVENTIONAL
Masking
NONE
Allocation
NA
Model
SINGLE_GROUP
Primary Purpose
PREVENTION
Number of Arms
1
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