Actively Recruiting
Addressing Emotional Distress in Dyads of Persons With a Young Onset Dementia (YOD) and Their Care-partners
Led by Massachusetts General Hospital · Updated on 2026-04-15
388
Participants Needed
1
Research Sites
257 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The purpose of the present investigation is to test the efficacy of a virtual, brief (6 sessions) dyadic (patient and care-partner together) intervention to prevent chronic emotional distress in dyads where one person is diagnosed with Young Onset Dementia (YOD). Through this study, we seek to address the unmet need of preventing chronic emotional distress in YOD dyads through a feasible, acceptable and credible program, and ideally enhance resiliency and improve wellbeing and quality of life in both members of the dyad.
CONDITIONS
Official Title
Addressing Emotional Distress in Dyads of Persons With a Young Onset Dementia (YOD) and Their Care-partners
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Between the ages of 18-65 at the time of enrollment for both patient and care-partner
- Diagnosis of young-onset dementia (FTD, PPA, AD, PCA, etc.) with symptom onset before age 65 for the patient
- A designated care-partner willing and interested to participate for both patient and care-partner
- Received YOD diagnosis in the past 6 months for the patient
- English fluency and literacy for both patient and care-partner
- Cognitive ability to understand study and research protocol to consent to participation for both patient and care-partner
- Patient and/or caregiver show emotional distress on screening with HADS D and/or HADS A scores greater than 7
You will not qualify if you...
- Having an additional, terminal diagnosis such as cancer
- Lack of access to internet and/or a device with a camera
- Current untreated or unstable severe mental health conditions like bipolar disorder, schizophrenia, or active substance use
AI-Screening
AI-Powered Screening
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Trial Site Locations
Total: 1 location
1
Massachusetts General Hospital (MGH)
Boston, Massachusetts, United States, 02114
Actively Recruiting
Research Team
A
Ana-Maria Vranceanu, PhD
CONTACT
M
Maggie L Syme, PhD, MPH
CONTACT
How is the study designed?
Study Type
INTERVENTIONAL
Masking
DOUBLE
Allocation
RANDOMIZED
Model
PARALLEL
Primary Purpose
TREATMENT
Number of Arms
2
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