Actively Recruiting
Adult Tic Disorders Registry
Led by Assistance Publique - Hôpitaux de Paris · Updated on 2025-09-04
450
Participants Needed
7
Research Sites
N/A
Total Duration
On this page
AI-Summary
What this Trial Is About
This research aims to develop a registry for adults with tic disorders to better understand how tic severity relates to the impact on daily life, particularly comparing women and men with these conditions. The study is observational, focusing on collecting detailed information rather than testing specific treatments. Participants will complete various quality of life and symptom questionnaires, including scales like PUTS, OCI, TS-QOL, ASRS, GAD-7, PHQ9, and TAPS. These assessments help to capture the severity of tics and their effects. The main focus is on gathering data to analyze the relationship between tic severity and quality of life over a six-month period. During the study, participants will be asked to fill out these questionnaires, which provide insight into their symptoms and well-being. Researchers will measure the correlation between quality of life and tic severity at six months, as well as any changes in tics during this time. The study involves ongoing observation without treatment intervention, and participants' involvement will last at least six months to allow for these assessments.
CONDITIONS
Brief Title
Adult Tic Disorders Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Age over 18 years
- Diagnosis of tic disorders
- Provided non-opposition (agreement) to participate
You will not qualify if you...
- Not affiliated with French health social insurance
- Presence of significant congenital disorders affecting understanding of assessments
- Under legal guardianship or curatorship
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Your Study Journey
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
1 visit (in-person or remote)
Duration - 6 months
Participants complete quality of life questionnaires and assessments related to tic disorders over time.
Questionnaires completed at baseline and during follow-up visits
Trial Site Locations
Total: 7 locations
1
CHU Clermont-Ferrand
Clermont-Ferrand, France, 63003
Actively Recruiting
2
CHU Limoges
Limoges, France, 87042
Actively Recruiting
3
CHU Marseille
Marseille, France, 13003
Actively Recruiting
4
Service de Neurologie, GH Pitié Salpêtrière
Paris, France, 75013
Actively Recruiting
5
CHU Poitiers
Poitiers, France, 86000
Actively Recruiting
6
CHU Nantes
Saint-Herblain, France, 44800
Actively Recruiting
7
CHU Strasbourg
Strasbourg, France, 67200
Actively Recruiting
Research Team
E
Emmanuel Flamand-Roze, MD, PhD
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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