Actively Recruiting
Alpha-1 Research Registry
Led by Alpha-1 Foundation · Updated on 2024-01-30
4000
Participants Needed
1
Research Sites
521 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The Alpha-1 Research Registry is a confidential database made up of individuals diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1) and individuals identified as Alpha-1 carriers. The Registry was established to facilitate research initiatives and promote the development of improved treatments and a cure for Alpha-1.
CONDITIONS
Official Title
Alpha-1 Research Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Patients diagnosed with Alpha-1 Antitrypsin Deficiency (PiZZ, PiZNull, PiSZ etc.)
- Alpha-1 carriers (PiMZ, PiMS etc.)
You will not qualify if you...
- Failure to provide informed consent
- Normal healthy individuals (MM)
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Alpha-1 Foundation
Coral Gables, Florida, United States, 33134
Actively Recruiting
Research Team
A
Alison Keaveny, MBBS
CONTACT
R
Randel Plant
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
2
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