Actively Recruiting
A Prospective, Multicenter Registry Study of Amyotrophic Lateral Sclerosis in Thailand
Led by Chulalongkorn University · Updated on 2025-09-16
100
Participants Needed
1
Research Sites
N/A
Total Duration
On this page
AI-Summary
What this Trial Is About
Researchers are conducting a prospective, observational registry study to collect detailed clinical, genetic, and outcome data from patients diagnosed with amyotrophic lateral sclerosis (ALS) across Thailand. The study aims to build a national database to better understand ALS epidemiology, clinical features, disease progression, and treatment outcomes. This registry will also provide a foundation for future clinical and translational research in ALS. Patients diagnosed with ALS will be enrolled from major academic hospitals and specialized neuromuscular centers across Thailand. No experimental treatments are involved; patients will continue receiving standard care as determined by their doctors. Data will be gathered through standardized assessments such as the ALS Functional Rating Scale-Revised (ALSFRS-R), clinical staging systems, motor and respiratory function tests, quality-of-life questionnaires, and cognitive and behavioral evaluations. Participants will be followed over time with data securely stored in an electronic database that meets privacy standards. Researchers will track survival over 10 years along with functional decline, disease progression, respiratory health, quality of life changes, cognitive status, genetic and environmental risk factors, and healthcare usage. The study will last for a long-term period, aiming to provide comprehensive insights into ALS in Thailand.
CONDITIONS
Brief Title
Amyotrophic Lateral Sclerosis Registry in Thailand
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Diagnosis of ALS according to El Escorial or Gold Coast criteria
- Age 18 years or older
- Ability and willingness to provide informed consent
You will not qualify if you...
- Patients unwilling to provide informed consent
- Patients with alternative diagnoses mimicking ALS
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Your Study Journey
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
Duration - Up to 10 years
Participants who undergo routine care are observed with standardized assessments including functional scales, staging systems, motor and respiratory function, quality-of-life measures, and cognitive/behavioral evaluations.
Trial Site Locations
Total: 1 location
1
King Chulalongkorn Memorial hospital, The Thai Red Cross Society
Pathum Wan, Bangkok, Thailand, 10330
Actively Recruiting
Research Team
J
Jakkrit Amornvit, MD
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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