Actively Recruiting
Application of a Systematic Developmental Assessment to a Novel Population: Infants With Rare Genetic Disorders
Led by Boston Children's Hospital · Updated on 2024-06-21
150
Participants Needed
1
Research Sites
327 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The main objective of this study is to apply a well-established model of developmental surveillance (which evolved to characterize the outcomes of very low birth weight infants) to infants with genetic disorders. A novel clinical model for infants with rare genetic disorders has been created as a joint initiative between the Division of Newborn Medicine's NICU Growth and Developmental Support Programs (NICU GraDS) program and the Division of Genetics at Boston Children's Hospital (BCH). This study plans to enroll patients with genetic syndromes seen in this clinic into a prospective, longitudinal study in order to characterize their developmental profiles and needs.
CONDITIONS
Official Title
Application of a Systematic Developmental Assessment to a Novel Population: Infants With Rare Genetic Disorders
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Infants under 4 years of age with genetic disorders undergoing developmental surveillance in the NICU GraDS program
You will not qualify if you...
- Children 4 years of age or older will be excluded
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Boston Children's Hospital
Boston, Massachusetts, United States, 02115
Actively Recruiting
Research Team
M
Monica H Wojcik, MD
CONTACT
J
Jonathan Litt, MD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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