Argentine Registry Collecting Data on Crohns Disease and Ulcerative Colitis Patients

What this Trial Is About

This research aims to create a comprehensive registry of patients with Inflammatory Bowel Disease IBD in Argentina, including both children and adults. The registry collects detailed demographic, clinical, and diagnostic information from routine medical care to better understand IBD in this population. It also evaluates safety aspects, such as infections, access to healthcare, and treatment effectiveness, including complications like flares, hospitalizations, and surgeries. The registry is observational, involving no experimental treatments or interventions. It is coordinated by multiple committees overseeing administration, scientific initiatives, and methodological support. Physicians across Argentina who manage IBD patients contribute data through a secure web platform. Participation is voluntary for both doctors and patients, with ethical approval and informed consent processes in place to protect patient privacy. Participants contribute data during routine clinical visits, which are uploaded and monitored centrally to ensure quality and completeness. Researchers analyze information on demographics, treatment safety, and clinical outcomes. The registry supports ongoing research projects to address important regional questions on IBD. Participation duration and follow-up depend on routine care, with data collection continuing over time to support epidemiological studies.

Argentine Registry of Crohn's Disease and Ulcerative Colitis