Actively Recruiting

Phase 1
Phase 2
Age: 2Years - 12Years
All Genders
NCT07531745

ASCEND: Safety and Tolerability of ION337 for the Treatment of Dravet Syndrome

Led by Ionis Pharmaceuticals, Inc. · Updated on 2026-05-04

32

Participants Needed

2

Research Sites

243 weeks

Total Duration

On this page

AI-Summary

What this Trial Is About

The primary purpose of this study is to evaluate the safety and tolerability of ION337 in participants with Dravet syndrome (DS).

CONDITIONS

Official Title

ASCEND: Safety and Tolerability of ION337 for the Treatment of Dravet Syndrome

Who Can Participate

Age: 2Years - 12Years
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Participant is aged 2 to 12 years old at the time of informed consent.
  • Has at least one parent or caregiver aged 2 who can provide informed consent and attend all study visits.
  • Documented diagnosis of Dravet syndrome based on ILAE criteria and ESCI agreement.
  • Confirmation of a pathogenic or likely pathogenic SCN1A variant.
  • Currently receiving at least one anti-seizure medication at a stable dose for at least 4 weeks before consent.
  • All other epilepsy treatments, including ketogenic diet or vagus nerve stimulator (VNS), and any other medications or supplements stable for at least 4 weeks before consent.
  • Vagus nerve stimulator implantation must have been done at least 6 months before consent.
  • Experiences the required number of major motor seizures during the screening period.
Not Eligible

You will not qualify if you...

  • Known brain or spinal disease that would interfere with lumbar puncture or cerebrospinal fluid circulation, or other safety concerns for lumbar puncture.
  • Pathogenic or likely pathogenic variant in another gene causing epilepsy.
  • Prior or current treatment in an interventional trial for gene therapy or another antisense oligonucleotide for Dravet syndrome.
  • Prior or current treatment in an interventional trial of any investigational drug, biological agent, or device within 30 days before screening or for 5 half-lives of the agent, whichever is longer.
  • Current treatment with an anti-seizure medication acting mainly as a sodium channel blocker.
  • Previous brain surgeries including corpus callosotomy, deep brain stimulation device implantation, or other palliative brain surgeries aimed at reducing seizures.

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Trial Site Locations

Total: 2 locations

1

University of Michigan Health System

Ann Arbor, Michigan, United States, 48109

Actively Recruiting

2

Le Bonheur Children's Hospital

Memphis, Tennessee, United States, 38103

Actively Recruiting

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Research Team

I

Ionis Pharmaceuticals, Inc.

CONTACT

How is the study designed?

Study Type

INTERVENTIONAL

Masking

NONE

Allocation

NON_RANDOMIZED

Model

SEQUENTIAL

Primary Purpose

TREATMENT

Number of Arms

5

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