Actively Recruiting

All Genders
Healthy Volunteers
ID00582621

Ascertainment of Families for Genetic Studies of Familial Lymphoproliferative Disorders

Led by Memorial Sloan Kettering Cancer Center · Updated on 2026-01-23

500

Participants Needed

6

Research Sites

N/A

Total Duration

On this page

Sponsors

M

Memorial Sloan Kettering Cancer Center

Lead Sponsor

M

Montefiore Medical Center

Collaborating Sponsor

AI-Summary

What this Trial Is About

Researchers are studying the genetic causes of Hodgkin's disease, non-Hodgkin's lymphoma, multiple myeloma, leukemia, and related blood cancers. The study focuses on families where one or more members have these lymphoproliferative disorders or related cancers, aiming to better understand inherited risks. This observational study is led by Memorial Sloan Kettering Cancer Center and looks to gather genetic information to aid research on these conditions. Participants include individuals with personal or family histories of lymphoma or related diseases. The study collects DNA samples and frozen lymphocytes to support genetic laboratory investigations. The goal is to build a collection that facilitates research into familial lymphoid cancers and to identify new genes that may predispose families to these diseases. The study includes patients and family members, including children, and involves broad eligibility criteria to encompass various types of lymphoproliferative diseases. During the study, participants provide biological samples for DNA storage and genetic analysis. Researchers verify diagnoses through medical records and family history questionnaires. The primary outcome is establishing a DNA and cell repository over 2 years, with secondary goals to perform genetic linkage and candidate gene studies. Participants may be followed for about 2 years, with no treatments involved. The study involves minimal risk and includes assessments of family history and genetic predisposition to lymphoid cancers.

CONDITIONS

Brief Title

Ascertainment of Families for Genetic Studies of Familial Lymphoproliferative Disorders

Who Can Participate

All Genders
Healthy Volunteers

Eligibility Criteria

Eligible

You may qualify if you...

  • Individuals with a personal or family history of lymphoma, leukemia, multiple myeloma, or related lymphoproliferative diseases.
  • Patients referred from outpatient clinics of Lymphoma, Multiple Myeloma, or Leukemia Services.
  • Family members including siblings, children, grandparents, aunts, and uncles of affected individuals.
  • Women with Hodgkin's disease who received therapeutic irradiation or developed secondary cancers.
  • Minors may participate with assent and legal guardian consent.
  • Patients with lymphoma associated with colon or renal cancer are eligible for DNA storage.
  • Individuals previously consented to related genetic epidemiology studies may be included.
Not Eligible

You will not qualify if you...

History of severe allergic reactions to study medication Currently pregnant or breastfeeding Recent participation in another clinical trial within the last 30 days Presence of uncontrolled medical conditions that could affect safety

AI-Screening

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Your Study Journey

Screening

Duration - 2 to 4 weeks

Participants are screened for eligibility to participate in the trial.

1 visit (in-person)

Sample Collection

Duration - Up to 2 years

Participants provide DNA and frozen lymphocyte samples for genetic laboratory investigations.

1 to 2 visits depending on family history and sample requirements

Long-term Monitoring

Duration - Up to 2 years

Participants are observed for genetic studies related to familial lymphoproliferative disorders.

Visits as needed for sample collection and genetic analysis updates

Trial Site Locations

Total: 6 locations

1

Memorial Sloan Kettering Basking Ridge

Basking Ridge, New Jersey, United States, 07920

Actively Recruiting

2

Memorial Sloan Kettering Monmouth

Middletown, New Jersey, United States, 07748

Actively Recruiting

3

Memorial Sloan Kettering Commack

Commack, New York, United States, 11725

Actively Recruiting

4

Memorial Sloan Kettering Westchester

Harrison, New York, United States, 10604

Actively Recruiting

5

Memorial Sloan Kettering Cancer Center

New York, New York, United States, 10065

Actively Recruiting

6

Memorial Sloan Kettering Rockville

Rockville Centre, New York, United States, 11570

Actively Recruiting

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Research Team

K

Kenneth Offit, MD

G

Gilles Salles, MD, PhD

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

0

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