Evaluating Caregiver Support and Costs in Alzheimers Disease Patients Aged 60 and Older in the MEM-AURA Cohort

What this Trial Is About

Researchers are studying the amount and impact of informal care provided by family members or caregivers to patients with Alzheimers disease, particularly at different stages of the condition. This research focuses on patients aged 60 and older diagnosed with dementia due to clinically probable Alzheimers disease, who have varying degrees of cognitive decline as measured by the Mini-Mental State Evaluation MMSE. The study aims to understand how cognitive decline, loss of autonomy, comorbidities, behavioral issues, and caregiver burden influence the use and cost of informal care. The study involves patients from Charpennes Hospital who are part of the MEM-AURA cohort, all accompanied by a caregiver. Researchers collect data using the Ressources Utilisation in Dementia RUD questionnaire, which gathers information on the use of services available to dementia patients. The primary focus is on measuring informal care costs at the start of the study or within 15 days after inclusion. Participants will be involved through their inclusion in the cohort and completion of questionnaires about care resources and costs. Researchers will assess the economic burden of informal care and analyze the clinical factors affecting it in Alzheimers patients. The study will track informal care costs as the main outcome, while safety and withdrawal criteria are monitored throughout the study period, which starts in September 2025 and ends in September 2027.

Assessment of Informal Support Provided by Caregivers at Different Stages of Alzheimer's Disease