Actively Recruiting

All Genders
NCT01522183

Atypical Hemolytic-Uremic Syndrome (aHUS) Registry

Led by Alexion Pharmaceuticals, Inc. · Updated on 2025-09-16

3000

Participants Needed

141

Research Sites

928 weeks

Total Duration

On this page

Sponsors

A

Alexion Pharmaceuticals, Inc.

Lead Sponsor

S

Syneos Health

Collaborating Sponsor

AI-Summary

What this Trial Is About

Post-marketing safety data on patients treated and untreated with eculizumab or ravulizumab.

CONDITIONS

Official Title

Atypical Hemolytic-Uremic Syndrome (aHUS) Registry

Who Can Participate

All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Male or female patients of any age, including minors, who have been diagnosed with aHUS
  • Patients with or without an identified complement pathogenic variant or anti-complement factor antibody
  • Able to give written informed consent. Patient or patient's parent/legal guardian must be willing and able to give written informed consent and the patient (if minor) must be willing to give written informed assent if applicable
  • ADAMTS13 > 5%, if performed
Not Eligible

You will not qualify if you...

  • Hemolytic Uremic Syndrome (HUS) only due to Shiga Toxin producing Escherichia coli (STEC)
  • Unable to give written informed consent. Patient or patient's parent/legal guardian unable to give written informed consent. Patient (if minor) unable to give written informed assent if applicable

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Trial Site Locations

Total: 141 locations

1

Clinical Trial Site

Aurora, Colorado, United States, 80045

Actively Recruiting

2

Clinical Trial Site

Washington D.C., District of Columbia, United States, 20007

Actively Recruiting

3

Clinical Trial Site

Gainesville, Florida, United States, 32610

Actively Recruiting

4

Clinical Trial Site

Atlanta, Georgia, United States, 30322

Actively Recruiting

5

Clinical Trial Site

Chicago, Illinois, United States, 60614

Withdrawn

6

Clinical Trial Site

Boston, Massachusetts, United States, 02115

Actively Recruiting

7

Clinical Trial Site

St Louis, Missouri, United States, 63110

Actively Recruiting

8

Clinical Trial Site

Winston-Salem, North Carolina, United States, 27103

Withdrawn

9

Clinical Trial Site

Columbus, Ohio, United States, 43210

Active, Not Recruiting

10

Clinical Trial Site 1

Westmead, New South Wales, Australia, 2145

Actively Recruiting

11

Clinical Trial Site 2

Westmead, New South Wales, Australia, 2145

Actively Recruiting

12

Clinical Trial Site

Cairns, Queensland, Australia, 4870

Actively Recruiting

13

Clinical Trial Site

Herston, Queensland, Australia, 4029

Actively Recruiting

14

Clinical Trial Site

Woolloongabba, Queensland, Australia, 4102

Actively Recruiting

15

Clinical Trial Site

Adelaide, South Australia, Australia, 5000

Actively Recruiting

16

Clinical Trial Site

Heidelberg, Victoria, Australia, 3084

Actively Recruiting

17

Clinical Trial Site

Parkville, Victoria, Australia, 3050

Actively Recruiting

18

Clinical Trial Site

Parkville, Victoria, Australia, 3052

Actively Recruiting

19

Clinical Trial Site

Murdoch, Western Australia, Australia, 6961

Actively Recruiting

20

Clinical Trial Site

Nedlands, Western Australia, Australia, 6109

Active, Not Recruiting

21

Clinical Trial Site

Brussels, Belgium, 1020

Active, Not Recruiting

22

Clinical Trial Site

Brussels, Belgium, 1070

Actively Recruiting

23

Clinical Trial Site

Brussels, Belgium, 1090

Actively Recruiting

24

Clinical Trial Site (Adult)

Edegem, Belgium, 2650

Actively Recruiting

25

Clinical Trial Site (Pediatric)

Edegem, Belgium, 2650

Actively Recruiting

26

Clinical Trial Site (pediatric)

Ghent, Belgium, 9000

Actively Recruiting

27

Clinical Trial Site (Adult)

Leuven, Belgium, 3000

Actively Recruiting

28

Clinical Trial Site (pediatric)

Leuven, Belgium, 3000

Actively Recruiting

29

Clinical Trial Site (Adult)

Liège, Belgium, 4000

Actively Recruiting

30

Clinical Trial Site (pediatric)

Liège, Belgium, 4000

Actively Recruiting

31

Clinical Trial Site (adult)

Woluwe-Saint-Lambert, Belgium, 1200

Actively Recruiting

32

Clinical Trial Site (Pediatric)

Woluwe-Saint-Lambert, Belgium, 1200

Actively Recruiting

33

Clinical Trial Site

London, Ontario, Canada, N6A 5W9

Actively Recruiting

34

Clinical Trial Site

Toronto, Ontario, Canada, M5G 1X8

Actively Recruiting

35

Clinical Trial Site

Montreal, Quebec, Canada, H3T 1C5

Actively Recruiting

36

Clinical Trial Site

Québec, Quebec, Canada, 44035

Actively Recruiting

37

Clinical Trial Site

Odense, Denmark, 5000

Actively Recruiting

38

Clinical Trial Site 1

Amiens, France, 80054

Actively Recruiting

39

Clinical Trial Site 2

Amiens, France, 80054

Actively Recruiting

40

Clinical Trial Site

Angers, France, 49933

Actively Recruiting

41

Clinical Trial Site

Bayonne, France, 64109

Actively Recruiting

42

Clinical Trial Site

Bordeaux, France, 33076

Active, Not Recruiting

43

Clinical Trial Site

Brest, France, 29609

Actively Recruiting

44

Clinical Trial Site

Bron, France, 69677

Actively Recruiting

45

Clinical Trial Site

Caen, France, 30001

Actively Recruiting

46

Clinical Trial Site

Chambéry, France, 73011

Actively Recruiting

47

Clinical Trial Site

Clermont-Ferrand, France, 63000

Actively Recruiting

48

Clinical Trial Site

Dijon, France, 21080

Actively Recruiting

49

Clinical Trial Site

Grenoble, France, 38043

Actively Recruiting

50

Clinical Trial Site

Le Kremlin-Bicêtre, France, 94270

Actively Recruiting

51

Clinical Trial Site

Lille, France, 59037

Actively Recruiting

52

Clinical Trial Site

Lille, France

Withdrawn

53

Clinical Trial Site

Lyon, France

Actively Recruiting

54

Clinical Trial Site

Marseille, France

Actively Recruiting

55

Clinical Trial Site

Montpellier, France

Actively Recruiting

56

Clinical Trial Site 1

Nancy, France, 54500

Actively Recruiting

57

Clinical Trial Site

Nancy, France, 54500

Actively Recruiting

58

Clinical Trial Site

Nantes, France, 44 093

Actively Recruiting

59

Clinical Trial Site 1

Nantes, France, 44000

Actively Recruiting

60

Clinical Trial Site

Nice, France, 51069

Actively Recruiting

61

Clinical Trial Site 2

Paris, France, 75015

Actively Recruiting

62

Clinical Trial Site 4

Paris, France, 75015

Actively Recruiting

63

Clinical Trial Site 1

Paris, France, 75019

Actively Recruiting

64

Clinical Trial Site 5

Paris, France, 75743

Actively Recruiting

65

Clinical Trial Site 3

Paris, France, 75970

Actively Recruiting

66

Clinical Trial Site

Perpignan, France

Actively Recruiting

67

Clinical Trial Site

Poitiers, France

Actively Recruiting

68

Clinical Trial Site

Pontoise, France

Actively Recruiting

69

Clinical Trial Site

Rennes, France, 35203

Actively Recruiting

70

Clinical Trial Site

Rennes, France

Actively Recruiting

71

Clinical Trial Site 1

Rouen, France

Actively Recruiting

72

Clinical Trial Site 2

Rouen, France

Actively Recruiting

73

Clinical Trial Site 1

Strasbourg, France

Actively Recruiting

74

Clinical Trial Site 2

Strasbourg, France

Actively Recruiting

75

Clinical Trial Site

Toulouse, France, 31059

Actively Recruiting

76

Clinical Trial Site

Toulouse, France, 70034

Actively Recruiting

77

Clinical Trial Site

Tours, France

Actively Recruiting

78

Clinical Trial Site

Valenciennes, France, 50479

Actively Recruiting

79

Clinical Trial Site

Essen, Germany, 45147

Actively Recruiting

80

Clinical Trial Site 1

Hanover, Germany, 30625

Actively Recruiting

81

Clinical Trial Site 2

Hanover, Germany, 30625

Actively Recruiting

82

Clinical Trial Site

Heidelberg, Germany, 69120

Actively Recruiting

83

Clinical Trial Site

Lübeck, Germany, 23538

Active, Not Recruiting

84

Clinical Trial Site

Münster, Germany, 48149

Actively Recruiting

85

Clinical Trial Site

Tübingen, Germany, 72076

Withdrawn

86

Clinical Trial Site

Beersheba, Israel, 84101

Actively Recruiting

87

Clinical Trial Site 1

Bari, Italy, 70124

Actively Recruiting

88

Clinical Trial Site 2

Bari, Italy, 70124

Actively Recruiting

89

Clinical Trial Site

Florence, Italy, 50134

Actively Recruiting

90

Clinical Trial Site

Genova, Italy, 16147

Actively Recruiting

91

Clinical Trial Site 1

Milan, Italy, 20122

Actively Recruiting

92

Clinical Trial Site 2

Milan, Italy, 20122

Actively Recruiting

93

Clinical Trial Site

Milan, Italy, 20163

Actively Recruiting

94

Clinical Trial Site

Roma, Italy, 00165

Actively Recruiting

95

Clinical Trial Site

Torino, Italy

Withdrawn

96

Clinical Trial Site

Lodz, Poland, 92-213

Actively Recruiting

97

Clinical Trial Site

Lodz, Poland, 93-338

Actively Recruiting

98

Clinical Trial Site 1

Moscow, Russia

Completed

99

Clinical Trial Site 2

Moscow, Russia

Completed

100

Clinical Trial Site

Saint Petersburg, Russia

Completed

101

Clinical Trial Site

Dongan, Chungcheongnam-do, South Korea, 31151

Actively Recruiting

102

Clinical Trial Site

Seoul, Dongnam-ro, South Korea, 05278

Actively Recruiting

103

Clinical Trial Site

Anyang-si, Gyeonggi-do, South Korea, 14068

Active, Not Recruiting

104

Clinical Trial Site

Goyang-si, Gyeonggi-do, South Korea, 411-706

Withdrawn

105

Clinical Trial Site

Daegu, Hyeonchung-ro, South Korea, 42415

Actively Recruiting

106

Clinical Trial Site

Gwangju, Jebong Ro, South Korea, 61469

Actively Recruiting

107

Clinical Trial Site

Daegu, South Korea, 35015

Actively Recruiting

108

Clinical Trial Site 1

Gyeonggi-do, South Korea, 13620

Active, Not Recruiting

109

Clinical Trial Site 2

Gyeonggi-do, South Korea, 46371

Actively Recruiting

110

Clinical Trial Site

Jeju-do, South Korea, 63241

Active, Not Recruiting

111

Clinical Trial Site

Jeollabuk-do, South Korea, 54907

Active, Not Recruiting

112

Clinical Trial Site 2

Seoul, South Korea, 02841

Actively Recruiting

113

Clinical Trial Site 3

Seoul, South Korea, 03722

Actively Recruiting

114

Clinical Trial Site 5

Seoul, South Korea, 05505

Actively Recruiting

115

Clinical Trial Site 6

Seoul, South Korea, 06351

Actively Recruiting

116

Clinical Trial Site 7

Seoul, South Korea, 07985

Actively Recruiting

117

Clinical Trial Site 4

Seoul, South Korea, 08308

Actively Recruiting

118

Clinical Trial Site 1

Seoul, South Korea

Actively Recruiting

119

Clinical Trial Site 1

Barcelona, Spain, 09-08035

Actively Recruiting

120

Clinical Trial Site 2

Barcelona, Spain, 09-08035

Actively Recruiting

121

Clinical Trial Site

Pamplona, Spain, 15-31008

Actively Recruiting

122

Clinical Trial Site

Seville, Spain, 01-41013

Withdrawn

123

Clinical Trial Site

Basel, Switzerland, 4031

Terminated

124

Clinical Trial Site

Bern, Switzerland, 3010

Terminated

125

Clinical Trial Site

Surich, Switzerland, 8091

Terminated

126

Clinical Trial Site

Kaohsiung City, Taiwan, 81362

Actively Recruiting

127

Clinical Trial Site

New Taipei City, Taiwan, 10002

Actively Recruiting

128

Clinical Trial Site

Taichung, Taiwan, 40447

Actively Recruiting

129

Clinical Trial Site

Taoyuan, Taiwan, 33305

Actively Recruiting

130

Clinical Trial Site

Ankara, Turkey (Türkiye), 06500

Actively Recruiting

131

Clinical Trial Site

Istanbul, Turkey (Türkiye), 34093

Actively Recruiting

132

Clinical Trial Site

Kayseri, Turkey (Türkiye), 38039

Actively Recruiting

133

Clinical Trial Site

Cardiff, United Kingdom, C14 4XW

Actively Recruiting

134

Clinical Trial Site

Exeter, United Kingdom, EX2 5DW

Actively Recruiting

135

Clinical Trial Site

London, United Kingdom, NW3 2PF

Actively Recruiting

136

Clinical Trial Site

London, United Kingdom, W1T 4EU

Actively Recruiting

137

Clinical Trial Site

London, United Kingdom, WC1N 3JH

Actively Recruiting

138

Clinical Trial Site

Manchester, United Kingdom, M13 9WL

Actively Recruiting

139

Clinical Trial Site

Newcastle, United Kingdom, NE7 7DN

Withdrawn

140

Clinical Trial Site

Southampton, United Kingdom, SO16 6YD

Actively Recruiting

141

Clinical Trial Site

Wales, United Kingdom, SA6 6NL

Actively Recruiting

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Research Team

A

Alexion Pharmaceuticals, Inc. (Sponsor)

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

0

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Atypical Hemolytic-Uremic Syndrome (aHUS) Registry | DecenTrialz