Austrian Registry for Adults with Hypertrophic Cardiomyopathy Collecting Clinical and Genetic Data

What this Trial Is About

Researchers are conducting the Austrian Hypertrophic Cardiomyopathy HCM Registry, a prospective study enrolling patients from multiple outpatient clinics across Austria, including academic and non-academic centers. The registry aims to collect detailed clinical data on patients with HCM to facilitate innovative epidemiological analyses and improve standards of care by understanding gaps in evidence for this heart condition. Participants undergo a structured examination process that includes assessment of HCM symptoms, medical and family history, medication use, and specific red flags related to HCM. Clinical data collected include electrocardiograms, echocardiography, laboratory tests, and genetic testing. All information is entered into an electronic case report form to support multicenter analyses approved by a steering committee. During the study, patients will be followed over an average of 20 years with ongoing collection of data related to all-cause mortality and cardiovascular events. The registry supports cross-sectional and longitudinal analyses, aiming to harmonize clinical care for HCM patients in Austria. The total participation time depends on continued follow-up and data collection throughout the study duration.

Austrian Hypertrophic Cardiomyopathy Registry