Actively Recruiting
Autonomic Small Fiber Neuropathy and Ehlers Danlos Syndromes - Prospective Study and Registry
Led by RWTH Aachen University · Updated on 2025-02-04
200
Participants Needed
1
Research Sites
521 weeks
Total Duration
On this page
Sponsors
R
RWTH Aachen University
Lead Sponsor
D
DLR German Aerospace Center
Collaborating Sponsor
AI-Summary
What this Trial Is About
We examine patients with different autonomic neuropathies and Ehlers Danlos syndromes compared to healthy controls at three different points over time (baseline, after 3 months and after 1.5 years) to gain knowledge about the course of this disease and understand its pathophysiology, with a focus on Small Fiber neuropathy. Moreover we will validate the german version of the Malmö POTS Score and establish an easy diagnostic scheme for patients in outpatient care.
CONDITIONS
Official Title
Autonomic Small Fiber Neuropathy and Ehlers Danlos Syndromes - Prospective Study and Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Diagnosis of autonomic neuropathy
- Postural orthostatic tachycardia syndrome
- Hypermobile or classical Ehlers Danlos syndromes
- Chronic fatigue syndrome, mast cell activation syndrome, and/or PostCOVID syndrome
- Healthy controls
- Aged between 18 and 80 years
- Diagnosis and clinical testing performed in the outpatient clinic for patients
- German speaking
You will not qualify if you...
- Pregnancy
- Presence of a pacemaker or deep brain stimulation device
- Sensory or motor polyneuropathy
- Neurodegenerative disease
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
University clinic RWTH Aachen
Aachen, North Rhine-Westphalia, Germany, 52074
Actively Recruiting
Research Team
A
Andrea Maier, physician
CONTACT
D
Denver Igharo, student
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
5
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