Study of Parent and Child Communication About Genetic Cancer Risk in Children and Young Adults Aged 10 to 24

What this Trial Is About

Researchers are studying how parents communicate with children, adolescents, and young adults ages 10 to 24 who have a genetic risk for cancer due to a pathogenic or likely pathogenic variant in a known cancer predisposition gene. The study aims to understand the qualities of this communication, its impact on the young persons psychological well-being and cancer prevention behaviors, and the factors that help or hinder these conversations. This knowledge will help improve genetic education and support for families facing cancer risk. The study involves observing and analyzing how parents and their children talk about the childs genetic cancer risk through questionnaires and direct behavioral observations. A subgroup of participants will also take part in optional interviews to explore communication barriers and facilitators in more depth. This mixed-methods approach combines quantitative data with qualitative insights to provide a thorough understanding of family communication about cancer risk. Participants and their caregivers will complete questionnaires and participate in observed communication sessions at the start of the study. A smaller group will be invited for interviews over up to four years. Researchers will assess psychological outcomes such as anxiety and depression using standardized tools, knowledge about cancer risk and prevention, and the quality of communication between parents and children. The study is observational and does not involve treatment. Participation requires the ability to speak and read English and includes ongoing monitoring of psychosocial and prevention outcomes.

Barriers and Facilitators of Parent-Child Communication in Children With Cancer Predisposition