Actively Recruiting
Barriers and Facilitators of Parent-Child Communication in Children With Cancer Predisposition
Led by St. Jude Children's Research Hospital · Updated on 2026-04-23
125
Participants Needed
1
Research Sites
250 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
Testing children, adolescents, and young adults (CAYA) for a genetic risk for cancer can help with early prevention and detection of cancers through regular follow-ups and medical care. After receiving genetic test results, CAYA may not accurately understand what their results mean, and parents are often unsure about talking with their CAYA about their genetic risk for cancer. By understanding how parents communicate with their CAYA, the investigators can improve future genetic education to reduce cancer risk. Primary Objectives: * Identify qualities of parent-CAYA (child, adolescent, and young adults) communication about CAYAs' genomic cancer risk, and their association with CAYAs' psychosocial and prevention outcomes. * Examine the association between sociodemographic, cancer-related, and psychosocial factors and parent-CAYA communication regarding CAYAs' genomic risk for cancer. * Identify barriers and facilitators of parent-CAYA communication regarding CAYAs' genomic risk for cancer.
CONDITIONS
Official Title
Barriers and Facilitators of Parent-Child Communication in Children With Cancer Predisposition
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Patient aged 10 to 24 years (inclusive)
- Patient underwent germline genetic testing with a Pathogenic/Likely Pathogenic (P/LP) variant in a known cancer predisposition gene that increases risk for developing cancer
- P/LP result disclosed to the patient
- Patient has a primary caregiver willing to participate
- Patient and participating caregiver able to speak and read English
You will not qualify if you...
- Patient is only a carrier of a recessive variant that does not alone increase risk for cancer
- Inability or unwillingness of patient or participating caregiver or to give informed consent/assent
- Participating caregiver is under the age of 18 years
- Patient or participating caregiver has evidence of significant cognitive deficits (per medical record) that would interfere with the ability to comprehend study questions
- Patient's medical status or condition precludes completion of study (as determined by medical team, patient, or parent)
AI-Screening
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Trial Site Locations
Total: 1 location
1
St. Jude Children's Research Hospital
Memphis, Tennessee, United States, 38105
Actively Recruiting
Research Team
K
Katianne Sharp, PhD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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