Actively Recruiting

Age: 0 - 17Years
All Genders
ID06651580

Pediatric Longitudinal Cohort Study of Chronic Pancreatitis (INSPPIRE 2)

Led by M.D. Anderson Cancer Center · Updated on 2026-03-04

1600

Participants Needed

26

Research Sites

N/A

Total Duration

On this page

Sponsors

M

M.D. Anderson Cancer Center

Lead Sponsor

N

National Cancer Institute (NCI)

Collaborating Sponsor

AI-Summary

What this Trial Is About

Researchers are studying pediatric patients with acute recurrent pancreatitis (ARP) and chronic pancreatitis (CP) to identify genetic mutations that may raise the risk of developing pancreatic cancer. The goal is to better understand this population and find genetic markers that could predict early onset CP and its complications. This observational study is supported by the M.D. Anderson Cancer Center and lasts for up to 4 years. Participants provide blood, saliva, urine, or stool samples at the start of the study or during follow-up visits if initial samples were missed or insufficient. Every 12 months for 4 years, children complete quality-of-life assessments and questionnaires that take about 2 hours. After this period, participants are monitored yearly. Throughout the study, researchers collect health and quality-of-life data and analyze the biospecimens to identify risk factors and disease burden. Assessments include regular questionnaires and sample collections to track disease progression and outcomes. The total participation time includes 4 years of active data collection and continued yearly follow-up after study completion.

CONDITIONS

Brief Title

Biospecimen Collection to Identify Gene Mutations for High Risk Pancreatic Cancer in Pediatric Patients, INSPPIRE 2 Study

Who Can Participate

Age: 0 - 17Years
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Informed consent and/or assent signed by subjects or parents indicating awareness of the investigational nature of the study
  • Authorization signed for release of protected health information
  • Children under 18 years of age at enrollment
  • Diagnosis of acute recurrent pancreatitis defined by at least 2 episodes with resolution of pain and a pain-free interval of 1 month or more
  • Diagnosis of chronic pancreatitis with at least one irreversible structural change in the pancreas confirmed by imaging or biopsy
Not Eligible

You will not qualify if you...

  • Presence of significant medical illnesses that cannot be adequately controlled or would affect the ability to tolerate study procedures as judged by the investigator

AI-Screening

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Your Study Journey

Screening

Duration - 2 to 4 weeks

Participants are screened for eligibility to participate in the trial.

1 visit (in-person)

Monitoring

Duration - 4 years

Participants complete quality-of-life assessments and questionnaires for over 2 hours every 12 months for 4 years. They also undergo collection of blood, saliva, urine, or stool samples at baseline and as needed if samples were missed or inadequate.

Annual visits for 4 years

Long-term Monitoring

Duration - Ongoing after study completion

After completion of the study, participants are followed up every 12 months for ongoing observation.

Annual follow-up visits

Trial Site Locations

Total: 26 locations

1

Children's Hospital Los Angeles

Los Angeles, California, United States, 90027

Actively Recruiting

2

Cedars Sinai Medical Center

Los Angeles, California, United States, 90048

Actively Recruiting

3

UCSF Benioff Children's Hospital Oakland

Oakland, California, United States, 94609

Actively Recruiting

4

Stanford Cancer Institute Palo Alto

Palo Alto, California, United States, 94304

Actively Recruiting

5

University of Colorado

Denver, Colorado, United States, 80217-3364

Actively Recruiting

6

Emory University Hospital/Winship Cancer Institute

Atlanta, Georgia, United States, 30322

Actively Recruiting

7

Riley Hospital for Children

Indianapolis, Indiana, United States, 46202

Actively Recruiting

8

University of Iowa/Holden Comprehensive Cancer Center

Iowa City, Iowa, United States, 52242

Actively Recruiting

9

Ochsner Medical Center Jefferson

New Orleans, Louisiana, United States, 70121

Actively Recruiting

10

Johns Hopkins University/Sidney Kimmel Cancer Center

Baltimore, Maryland, United States, 21287

Actively Recruiting

11

Boston Children's Hospital

Boston, Massachusetts, United States, 02115

Actively Recruiting

12

University of Minnesota/Masonic Children's Hospital

Minneapolis, Minnesota, United States, 55454

Actively Recruiting

13

Washington University School of Medicine

St Louis, Missouri, United States, 63110

Actively Recruiting

14

Cincinnati Children's Hospital Medical Center

Cincinnati, Ohio, United States, 45229

Actively Recruiting

15

Nationwide Children's Hospital

Columbus, Ohio, United States, 43205

Actively Recruiting

16

Children's Hospital of Philadelphia

Philadelphia, Pennsylvania, United States, 19104

Actively Recruiting

17

Children's Hospital of Pittsburgh of UPMC

Pittsburgh, Pennsylvania, United States, 15224

Actively Recruiting

18

University of Texas Southwestern/Children's Medical Center

Dallas, Texas, United States, 75235

Actively Recruiting

19

M D Anderson Cancer Center

Houston, Texas, United States, 77030

Actively Recruiting

20

Texas Children's Hospital

Houston, Texas, United States, 77030

Actively Recruiting

21

Children's Hospital of San Antonio

San Antonio, Texas, United States, 78207

Actively Recruiting

22

Children's Hospital of Wisconsin

Milwaukee, Wisconsin, United States, 53226

Actively Recruiting

23

Sydney Children's Hospital

Randwick, New South Wales, Australia, 2031

Actively Recruiting

24

Hospital for Sick Children

Toronto, Ontario, Canada, M5G 1X8

Actively Recruiting

25

The Montreal Children's Hospital of the MUHC

Montreal, Quebec, Canada, H3H 1P3

Actively Recruiting

26

Hadassah University Hospital

Jerusalem, Israel, 91120

Actively Recruiting

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Research Team

Y

Ying Yuan, PHD

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

1

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