Actively Recruiting
Breaking Silence Through Story: A Narrative Medicine Intervention for Parents of Children With Urogenital Conditions
Led by Sarah Schlegel · Updated on 2025-10-23
20
Participants Needed
1
Research Sites
29 weeks
Total Duration
On this page
Sponsors
S
Sarah Schlegel
Lead Sponsor
H
Harvard Catalyst Pilot Grant
Collaborating Sponsor
AI-Summary
What this Trial Is About
The goal of this clinical trial is to learn whether a journaling intervention can reduce stress and anxiety in parents of children with urogenital conditions (such as differences of sex development and hypospadias). The main questions it aims to answer are: * Does guided journaling help to reduce anxiety levels in parents of children with urogenital conditions? * What are parents' perspectives on group-based writing interventions for future support programs? Participants will: * Complete a short anxiety questionnaire (the General Anxiety Disorder-7 scale) at the beginning of the study * Receive a physical journal with 5 writing prompts designed to help process emotions related to their child's condition * Complete 5 journal entries over several weeks, writing about their experiences and feelings * Complete the same anxiety questionnaire again after finishing the journal entries * Participate in a 45-minute interview to discuss how the journaling affected their stress levels and gather feedback on potential group-based writing programs
CONDITIONS
Official Title
Breaking Silence Through Story: A Narrative Medicine Intervention for Parents of Children With Urogenital Conditions
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Parent or legal guardian of a child (age 0-17 years) diagnosed with a urogenital condition (differences of sex development and/or hypospadias)
- Able to read and understand English
- Child receives care at Boston Children's Hospital
- Willing to complete a guided journaling intervention (through writing or dictation) over approximately 5 weeks
- Willing to participate in a 45 minute follow-up interview
- Able to provide informed consent
You will not qualify if you...
- Parent or guardian with severe psychiatric disorder that would interfere with participation as determined by referring physician
- Parent or guardian unable to complete either written journaling activities or dictation
- Unable to provide informed consent
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Boston Children's Hospital
Boston, Massachusetts, United States, 02115
Actively Recruiting
Research Team
S
Sarah Schlegel, MD, MS
CONTACT
How is the study designed?
Study Type
INTERVENTIONAL
Masking
NONE
Allocation
NA
Model
SINGLE_GROUP
Primary Purpose
SUPPORTIVE_CARE
Number of Arms
1
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