Actively Recruiting
CAPRI National Juvenile Idiopathic Arthritis Registry
Led by University of British Columbia · Updated on 2025-06-25
1238
Participants Needed
15
Research Sites
469 weeks
Total Duration
On this page
Sponsors
U
University of British Columbia
Lead Sponsor
C
Children's Hospital of Eastern Ontario
Collaborating Sponsor
AI-Summary
What this Trial Is About
Juvenile Idiopathic Arthritis (JIA) is a disorder of unknown cause characterized by chronic inflammation of the joints and other organs. It affects about 1 in a 1000 Canadian children and if untreated it can produce lifelong disability. The Canadian Alliance of Pediatric Rheumatology Investigators (CAPRI) includes most pediatric rheumatologists in Canada. They have successfully collaborated for the past 20 years producing groundbreaking research on the modern course and outcomes of JIA. The CAPRI JIA Registry is an ongoing universal registry of Canadian children with JIA that collects longitudinal data on disease course, outcomes and adverse events to inform healthcare decisions and to gain new insights into the disease and its treatment.
CONDITIONS
Official Title
CAPRI National Juvenile Idiopathic Arthritis Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- All patients newly diagnosed with JIA within the last 3 months
- All patients who participated in the original ReACCh-Out study
- LEAP study patients from 'newly diagnosed' and 'ReACCh-Out' cohorts who have completed their two year follow up in LEAP
You will not qualify if you...
- Patients with an unconfirmed JIA diagnosis
- Patients diagnosed with JIA more than 3 months prior to the clinic visit, who were not followed in LEAP and/or ReACCh-Out studies
- Families unable to answer questionnaires in English or French
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 15 locations
1
University of Calgary / Alberta Children's Hospital
Calgary, Alberta, Canada
Actively Recruiting
2
University of Alberta
Edmonton, Alberta, Canada
Actively Recruiting
3
BC Children's Hospital
Vancouver, British Columbia, Canada, V6H 3N1
Actively Recruiting
4
University of Manitoba/Children's hospital research institute
Winnipeg, Manitoba, Canada
Actively Recruiting
5
Memorial University/Janeway Childrens Health and Rehabilitation Centre
St. John's, Newfoundland and Labrador, Canada, Canada
Actively Recruiting
6
IIWK Health Centre
Halifax, Nova Scotia, Canada
Actively Recruiting
7
McMaster University/McMaster Children's Hospital
Hamilton, Ontario, Canada
Actively Recruiting
8
London Health Sciences Centre
London, Ontario, Canada
Actively Recruiting
9
Children's Hospital of Eastern Ontario
Ottawa, Ontario, Canada
Actively Recruiting
10
Hospital for Sick Children
Toronto, Ontario, Canada
Actively Recruiting
11
McGill University Health Centre
Montreal, Quebec, Canada
Actively Recruiting
12
Université de Montréal
Montreal, Quebec, Canada
Actively Recruiting
13
University of Sherbrooke
Sherbrooke, Quebec, Canada
Actively Recruiting
14
Royal University Hospital
Saskatoon, Saskatchewan, Canada
Actively Recruiting
15
CHU Québec - Universite Laval
Québec, Canada
Actively Recruiting
Research Team
J
Jaime Guzman, MD, FRCPC
CONTACT
M
Martha Sieres
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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