Study of Blood Clot and Heart Rhythm Problems in Adults with Von Willebrand Disease in Western France

What this Trial Is About

Von Willebrand disease is a common inherited bleeding disorder, and as patients live longer, they face age-related conditions like cancer and heart diseases. This study aims to understand how often blood clots in arteries or veins, and irregular heart rhythms atrial fibrillation, occur in adults with von Willebrand disease in the western region of France. Researchers want to fill gaps in current knowledge about these events and their management in this population. The study is a retrospective, multicenter observational investigation using data from adult patients with von Willebrand disease who are followed at medical centers in the French West and have experienced thrombotic or cardiovascular events. These events include deep vein thrombosis, pulmonary embolism, stroke, heart attack, limb ischemia, angina, and atrial fibrillation. Information about patient history, treatments like blood thinners or anti-platelet drugs, and complications such as bleeding or recurrence will be collected and analyzed. Participants will have their medical records reviewed to capture details about their von Willebrand disease, risk factors, and treatments related to blood clotting and heart conditions. The study will describe how often these events happen and their types, as well as look at treatment strategies and their tolerance and effectiveness. The research spans 12 months of data review, aiming to provide insights into managing these complex cases safely.

Cardiovascular and Venous Thromboembolism Disease in Patients with Von Willebrand Disease in the French West