Study of Patients with Hereditary Haemorrhagic Telangiectasia and Pulmonary Arteriovenous Malformations at Hammersmith Hospital

What this Trial Is About

This research aims to learn more about individuals with Hereditary Haemorrhagic Telangiectasia and pulmonary arteriovenous malformations who are seen at Hammersmith Hospital in London. The study looks at medical information collected during regular care since 1985 to understand which patients might be more likely to experience complications such as strokes, brain infections, pregnancy issues, or lung blood pressure problems. Researchers hope to identify clinical features that predict these risks. The study is observational, meaning it reviews existing patient records and clinical measurements without giving any new treatments or interventions. It focuses on analyzing data collected as part of routine care at the hospitals specialized service for this condition. Participants are not assigned to any treatment groups but are followed to see how their clinical characteristics relate to health outcomes. Participants contribute by allowing their medical records and measurements to be reviewed over time. The main outcomes being tracked are the occurrence of strokes and venous blood clots. The study uses data gathered during standard hospital visits and treatments without requiring extra procedures. This allows researchers to monitor patient health and complications in a real-world setting over an extended period, continuing until 2028.

Case Notes Review on Patients With Hereditary Haemorrhagic Telangiectasia