Understanding How Adults with Cerebral Palsy View Their Childhood Botulinum Toxin Treatments

What this Trial Is About

Researchers are investigating how adults with cerebral palsy CP perceive the botulinum toxin injections they received during childhood. This observational study aims to understand the long-term impact of these repeated treatments, focusing on patient-centered perspectives including treatment effectiveness, pain experienced, communication quality with healthcare providers, and coping strategies developed over time. The study addresses a gap in long-term data to improve future pediatric care and enhance quality of life for adults with CP. Participants will complete questionnaires about their experiences with childhood botulinum toxin treatments and their current coping methods. No new medical treatments are given as part of this study. The primary focus is on collecting patient-reported outcome measures at enrollment to assess treatment experience and coping strategies using tools like the BRIEF-Cope Scale. During the study, adults with CP will provide information through questionnaires about their past treatments and how they manage ongoing challenges. Researchers will evaluate these responses to better understand the emotional and physical burden of repeated toxin injections and the coping mechanisms used. This participation involves no interventional procedures and aims to inform improvements in care. The study is expected to start in February 2026 and continue through August 2026.

Childhood Toxin Perception Survey