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Study of Long-Term Outcomes and Quality of Life in Adults with Chronic Thromboembolic Disease and Pulmonary Hypertension
Led by University of California, San Francisco · Updated on 2026-07-14
100
Participants Needed
1
Research Sites
N/A
Total Duration
AI-Summary
What this Trial Is About
Researchers are conducting a patient registry to study the natural history of chronic thromboembolic disease CTD and chronic thromboembolic pulmonary hypertension CTEPH. The study aims to understand long-term outcomes after different treatments, including medication, balloon pulmonary angioplasty, and pulmonary endarterectomy. It also evaluates the effects of these treatments on patients quality of life and exercise ability. Participants who have received medical, surgical, or interventional treatments for CTD or CTEPH will be followed over time. The study involves collecting quality of life questionnaires and reviewing medical charts to track health outcomes. The observation period lasts an average of five years to monitor changes and outcomes related to the disease and treatments. During the study, participants survival rates, exercise tolerance, oxygen use, heart function class, and quality of life scores will be assessed regularly. Other measurements include changes in medications specific to CTEPHCTED, history of pulmonary procedures, and the number of lung transplants. The study team will collect data through surveys and medical record reviews to understand how patients fare over the long term.
CONDITIONS
Brief Title
Chronic Thromboembolic Disease Registry
Research Team
M
Miles Conrad, MD
X
Xiao Wu, MD
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