Actively Recruiting
Chronic Thromboembolic Disease Registry
Led by University of California, San Francisco · Updated on 2025-06-12
100
Participants Needed
1
Research Sites
256 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The goal of this patient registry is to learn about the natural history in patients with chronic thromboembolic disease (CTD) and/or chronic thromboembolic pulmonary hypertension (CTEPH). The main question\[s\] it aims to answer are: * Long-term outcome after various types of treatment, including medication, balloon pulmonary angioplasty, and pulmonary endarterectomy * Effect of treatment on patient's quality of life and exercise tolerance Participants will be followed longitudinally to assess their health outcomes and quality of life via chart review and health quality surveys.
CONDITIONS
Official Title
Chronic Thromboembolic Disease Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Patients referred with chronic thromboembolic disease (CTED) and/or chronic thromboembolic pulmonary hypertension (CTEPH) defined by:
- Mean pulmonary arterial pressure over 20 mmHg at rest with pulmonary vascular resistance over 2 Wood units; or if lower, have exercise limits from chronic thromboembolic pulmonary disease without pulmonary hypertension
- Radiologic evidence of chronic thromboembolic disease by abnormal ventilation perfusion scan, pulmonary angiogram, CT pulmonary angiogram, or MR pulmonary angiogram
- Post-embolic exercise intolerance and evidence of chronic thromboembolic disease without resting pulmonary hypertension
- Treatment with anticoagulation for 3 months or more before diagnosis of CTEPH or CTEPD without pulmonary hypertension
- Age 18 years or older
You will not qualify if you...
- Main cause of pulmonary hypertension other than World Health Organization (WHO) group 4 (CTEPH)
- Patient refusal to participate in clinical research and/or receive intervention
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
University of California San Francisco
San Francisco, California, United States, 94143
Actively Recruiting
Research Team
M
Miles Conrad, MD
CONTACT
X
Xiao Wu, MD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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