Actively Recruiting
Clinical Procedures to Support Research in ALS
Led by University of Miami · Updated on 2026-03-23
1200
Participants Needed
11
Research Sites
484 weeks
Total Duration
On this page
Sponsors
U
University of Miami
Lead Sponsor
M
Muscular Dystrophy Association
Collaborating Sponsor
AI-Summary
What this Trial Is About
The purpose of the Clinical Procedures To Support Research (CAPTURE) study is to utilize information collected in the medical record to learn more about a disease called amyotrophic lateral sclerosis (ALS) and related disorders.
CONDITIONS
Official Title
Clinical Procedures to Support Research in ALS
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Diagnosis of ALS or a related disorder (e.g. primary lateral sclerosis, progressive muscular atrophy).
- Receiving care at a clinical center that uses Epic as its electronic health record system.
- Able and willing to provide informed consent (or informed consent obtainable from a designated proxy).
You will not qualify if you...
- Inability to understand English and/or Spanish
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 11 locations
1
University of California, Irvine
Irvine, California, United States, 92868
Actively Recruiting
2
Stanford University
Palo Alto, California, United States, 94304
Actively Recruiting
3
California Pacific Medical Center
San Francisco, California, United States, 94115
Actively Recruiting
4
University of Miami
Miami, Florida, United States, 33136
Actively Recruiting
5
University of Kansas Medical Center
Kansas City, Kansas, United States, 66205
Actively Recruiting
6
Hennepin County Medical Center
Minneapolis, Minnesota, United States, 55404
Actively Recruiting
7
Columbia University
New York, New York, United States, 10032
Active, Not Recruiting
8
Duke University
Durham, North Carolina, United States, 27708
Actively Recruiting
9
Wake Forest University
Winston-Salem, North Carolina, United States, 27157
Actively Recruiting
10
Providence Health & Services
Portland, Oregon, United States, 97213
Actively Recruiting
11
University of Texas San Antonio Health Science Center
San Antonio, Texas, United States, 78229
Actively Recruiting
Research Team
M
Michael Benatar, MBChB, MS, DPhil
CONTACT
J
Jessica Hernandez
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
Not the Right Trial for You?
Explore thousands of other clinical trials that might be a better match.
Sign up to get personalized trial recommendations delivered to your inbox.
Already have an account? Log in here