Enhancing Information Management for Young Adults After Genetic Cancer Risk Testing

What this Trial Is About

This research aims to evaluate if the Nest software platform can improve cancer screening and care in young adults who have a genetic risk for cancer. The study focuses on whether using Nest helps patients better understand their cancer risks, feel less psychological stress, share risk information more with family and doctors, and keep their care plans up to date. The trial involves comparing patients who use Nest to those who do not. The Nest platform integrates genetic data into patient care through tools for both clinicians and patients. Clinicians use the Nest Care Studio to manage genetic information and order personalized care plans, while patients access the Nest Patient Navigator on mobile devices to store results, understand risks, follow care recommendations, and share information with relatives and other doctors. The study includes two groups: a control group receiving standard genetic counseling and an intervention group using Nest alongside counseling. Both groups complete surveys after visits, and patients follow recommended screening and care plans. Participants will have a genetic counseling or follow-up visit, complete post-visit surveys, and those in the intervention group will use the Nest Patient Navigator. Researchers will assess knowledge of cancer risks, psychological distress, information sharing, and adherence to care plans using multiple measures shortly after visits. The study also tracks clinician use of Nest features and guideline-based care. Participation lasts through the visits and follow-up recommended care, aiming to improve long-term management of hereditary cancer risk.

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