Actively Recruiting
The Co-Op @ HeartWorks
Led by HeartWorks, Inc. · Updated on 2025-10-07
500
Participants Needed
1
Research Sites
1353 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
This protocol is a research study involving human subjects diagnosed with Congenital Heart Defects/Disease (CHD). The Co-Op @ HeartWorks is a cooperative between the research platform at HeartWorks and members of the CHD community. Individuals choosing to participate will be referred to as 'members' of the co-op. This study aims to create a database of members medical journey data to inform future clinical innovation and design of clinical trials which address the needs of the members. The knowledge generated from this study will help advance the care of CHD patients through the deliberate action of The Co-Op @ HeartWorks members. Unlike a traditional disease registry, the members of The Co-Op @ HeartWorks will actively inform and contribute to the future studies affecting their health.
CONDITIONS
Official Title
The Co-Op @ HeartWorks
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Adult with a congenital heart defects/disease
- Caregiver of a minor with a congenital heart defect/disease
- Authorized family member of a now deceased person with congenital heart defect/disease
You will not qualify if you...
- Not having a congenital heart defect/disease
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
HeartWorks, Inc.
Rochester, Minnesota, United States, 55901
Actively Recruiting
Research Team
A
Adam Armstrong
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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