Long-Term Data Collection and Follow-Up Study for Patients with Thyroid, Parathyroid, and Adrenal Diseases at MD Anderson

What this Trial Is About

Researchers are collecting data to better understand thyroid, parathyroid, and adrenal diseases. This observational study involves patients with diagnosed or suspected endocrine diseases and aims to gather information from medical records and follow-ups. The data will help learn more about the participants or their childs illness, treatment, recovery, and medical history over a long period. Participants medical information will be recorded into a research database. Starting about 2 to 3 years after testing, diagnosis, or treatment, and continuing for up to 15 years after surgery, the research team will follow up by phone to ask about their current health and medical history. If participants have routine clinic visits near their follow-up time, the research team may meet them in person or send questionnaires by mail if needed. Participants or their children will be contacted every 2 to 3 years for phone interviews lasting about 20 to 30 minutes. The study will track their health status and medical history during these calls. The study aims to compile a comprehensive database over 15 years. Up to 15,000 patients will be enrolled, and participation involves data collection and periodic follow-up without altering usual care.

Comprehensive Data Collection and Follow-Up for Patients With Thyroid, Parathyroid and Adrenal Disease