Actively Recruiting

All Genders
ID03050762

Comprehensive Data Collection and Follow-Up for Patients With Thyroid, Parathyroid and Adrenal Disease

Led by M.D. Anderson Cancer Center · Updated on 2019-09-17

15000

Participants Needed

1

Research Sites

52 weeks

Total Duration

On this page

AI-Summary

What this Trial Is About

Researchers are collecting data to better understand thyroid, parathyroid, and adrenal diseases. This observational study involves patients with diagnosed or suspected endocrine diseases and aims to gather information from medical records and follow-ups. The data will help learn more about the participant's or their child's illness, treatment, recovery, and medical history over a long period. Participants' medical information will be recorded into a research database. Starting about 2 to 3 years after testing, diagnosis, or treatment, and continuing for up to 15 years after surgery, the research team will follow up by phone to ask about their current health and medical history. If participants have routine clinic visits near their follow-up time, the research team may meet them in person or send questionnaires by mail if needed. Participants or their children will be contacted every 2 to 3 years for phone interviews lasting about 20 to 30 minutes. The study will track their health status and medical history during these calls. The study aims to compile a comprehensive database over 15 years. Up to 15,000 patients will be enrolled, and participation involves data collection and periodic follow-up without altering usual care.

CONDITIONS

Brief Title

Comprehensive Data Collection and Follow-Up for Patients With Thyroid, Parathyroid and Adrenal Disease

Who Can Participate

All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Patients seen at MD Anderson with diagnosed or suspected endocrine disease
  • Patients selected by an Endocrine physician or screened by study personnel
  • Family members of deceased patients may be contacted to obtain cause of death information
Not Eligible

You will not qualify if you...

History of severe allergic reactions to study medication Currently pregnant or breastfeeding Recent participation in another clinical trial within the last 30 days Presence of uncontrolled medical conditions that could affect safety

AI-Screening

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Your Study Journey

Screening

Duration - 2 to 4 weeks

Participants are screened for eligibility to participate in the trial.

Surveillance

Duration - Up to 15 years

Participants' medical records are reviewed and information is collected into a research database to learn more about their current or suspected illness, surgery, recovery, and medical history.

Long-term Monitoring

Duration - Up to 15 years

Starting about 2 to 3 years after testing, diagnosis, or treatment, participants are contacted by phone or in person to follow up on their medical status every 2 to 3 years for up to 15 years after surgery.

Follow-up phone calls or in-person visits every 2 to 3 years

Trial Site Locations

Total: 1 location

1

University of Texas MD Anderson Cancer Center

Houston, Texas, United States, 77030

Actively Recruiting

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Research Team

N

Nancy D. Perrier, MD

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

1

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