Actively Recruiting
The Congenital Dyserythropoietic Anemia Registry (CDAR)
Led by Children's Hospital Medical Center, Cincinnati · Updated on 2025-05-15
10000
Participants Needed
1
Research Sites
748 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The investigators have created and maintain a comprehensive registry for patients with the diagnosis of Congenital Dyserythropoietic Anemia (CDA) in North America. The goal of this registry is to collect long-term confidential data on patients with CDA in the US, Canada, and Mexico and maintain a bio-repository of de-identified patient blood and bone marrow specimens as a tool for the investigation of epidemiology, natural history, biology, and molecular pathogenetic mechanisms of CDA.
CONDITIONS
Official Title
The Congenital Dyserythropoietic Anemia Registry (CDAR)
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Diagnosis of Congenital Dyserythropoietic Anemia (CDA), with or without identified genetic mutation
- Evidence of congenital anemia or jaundice, or positive family history
- Evidence of ineffective erythropoiesis
- Typical bone marrow erythroblast morphology
- All ages from 0 to 99 years
You will not qualify if you...
- Diagnosis of cancer
- Diagnosis of myelodysplasia
- Secondary dyserythropoiesis caused by vitamin B12 deficiency or drugs
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio, United States, 45229
Actively Recruiting
Research Team
H
Hotline
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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