Actively Recruiting

Phase Not Applicable
Age: 0Years - 24Months
All Genders
ID06828822

CIRCLE: Congenital Nevus Cohort for Longitudinal Evaluation

Led by Nantes University Hospital · Updated on 2026-03-09

819

Participants Needed

16

Research Sites

N/A

Total Duration

On this page

AI-Summary

What this Trial Is About

Researchers are studying congenital nevus (CN), a pigmented skin lesion present at birth that grows as the child grows. CN varies in size from small to giant and is linked to genetic mutations mainly in NRAS/BRAF genes. Larger CNs may lead to neurological problems such as neuro-meningeal melanosis and developmental delays, as well as an increased risk of melanoma. The study also looks at the social and emotional impact on children and their families, aiming to improve monitoring and treatment guidelines. The study involves children under 2 years old with medium to giant CN. It includes neurodevelopmental assessments using the ASQ-3 screening tool, meetings with parents to assess acceptance and quality of life via the MARKS test, and evaluations of patient quality of life. The study is non-randomized and observational in nature, focusing on monitoring and understanding CN characteristics and related risks. Participants will be followed for 3 years, during which the study will measure neurodevelopmental abnormalities, neurological issues such as epilepsy, MRI findings, melanoma occurrence, and changes in CN features. It will also assess parental satisfaction with care, lesion acceptance, and patient well-being through questionnaires. This long-term follow-up aims to gather detailed information to guide future CN management and improve outcomes for affected children.

CONDITIONS

Brief Title

CongenItal Naevus Cohort for Longitudinal Evaluation

Who Can Participate

Age: 0Years - 24Months
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Patient under 2 years old
  • Patient with a medium, large, or giant congenital nevus (CN) according to the Krengel classification, either single or multiple
  • Patient affiliated with social security
  • Patient whose legal representatives consent to their child's participation in the project
Not Eligible

You will not qualify if you...

  • Patient with light brown spots or pigmented lesions not classified as nevi
  • Patient for whom it is impossible to establish annual follow-up
  • Patient whose parents do not speak French

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Your Study Journey

Screening

Duration - 2 to 4 weeks

Participants are screened for eligibility to participate in the trial.

1 visit (in-person)

Surveillance

Duration - Up to 3 years

Participants with medium to giant congenital nevus are monitored to assess neurodevelopmental progress, neurological abnormalities, and clinical characteristics of the nevus over time.

Periodic visits over 3 years

Trial Site Locations

Total: 16 locations

1

Grasse Hospital

Nice, Alpes-Maritimes, France, 06130

Not Yet Recruiting

2

Nice University Hospital and Lenval Hospital

Nice, Alpes-Maritimes, France, 06200

Not Yet Recruiting

3

Marseille University Hospital

Marseille, Bouches-du-Rhône, France, 13005

Not Yet Recruiting

4

Dijon University Hospital

Dijon, Côte-d'Or, France, 21000

Not Yet Recruiting

5

La Réunion University Hospital

La Réunion, Département Et Région d'Outre-mer, France, 97400

Not Yet Recruiting

6

Brest University Hospital

Brest, Finistère, France, 29200

Not Yet Recruiting

7

Bordeaux University Hospital

Bordeaux, Gironde, France, 33000

Not Yet Recruiting

8

Toulouse University Hospital

Toulouse, Haute-Garonne, France, 31300

Not Yet Recruiting

9

Rennes University Hospital

Rennes, Ille-et-Vilaine, France, 35000

Not Yet Recruiting

10

Tours University Hospital

Tours, Indre-et-Loire, France

Not Yet Recruiting

11

Nantes University Hospital

Nantes, Loire Atlantique, France, 44300

Actively Recruiting

12

Angers University Hospital

Angers, Maine et Loire, France, 49100

Not Yet Recruiting

13

Nancy University Hospital

Nancy, Meurthe-et-Moselle, France, 54000

Not Yet Recruiting

14

Saint Vincent de Paul Hospital

Lille, Nord, France, 59000

Not Yet Recruiting

15

Paris Necker Hospital

Paris, Paris, France, 75015

Not Yet Recruiting

16

CHU Lille

Lille, France

Not Yet Recruiting

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Research Team

R

Research and Innovation Department of Nantes UH

H

Hélène AUBERT, M.D.

How is the study designed?

Study Type

INTERVENTIONAL

Masking

NONE

Allocation

NON_RANDOMIZED

Model

PARALLEL

Primary Purpose

SCREENING

Number of Arms

2

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