Study of Pregnancy Experiences and Effects on Craniopharyngioma in Adult Women

What this Trial Is About

Craniopharyngiomas are rare, benign tumors that develop near the pituitary gland and mostly affect children, adolescents, and adults. These tumors can cause serious health issues due to their invasive nature and tendency to recur, impacting quality of life through hormonal, vision, and cognitive problems. There is limited information about pregnancy outcomes and effects on craniopharyngiomas in women who have had these tumors, which this study aims to explore. This research involves patients who have or had craniopharyngiomas and focuses on describing pregnancies and their impact on tumor behavior. Participants will complete questionnaires about their parental projects, pregnancy complications, and the tumors response during and after pregnancy. The study is observational and conducted at a specialized center with expertise in endocrine and reproductive health. Participants will provide information through questionnaires supplemented by medical records. Researchers will assess how pregnancies were achieved, hormonal treatment adjustments, tumor changes, visual and neurocognitive effects, and weight changes during pregnancy. The study will last about one year, with each participants involvement around thirty minutes. Outcomes will help understand pregnancys role in craniopharyngioma management and patient care.

Craniopharyngioma and Pregnancies