Actively Recruiting
CuidAME: Longitudinal Data Collection From Patients With Spinal Muscular Atrophy in Spain
Led by Fundació Sant Joan de Déu · Updated on 2025-11-17
1000
Participants Needed
1
Research Sites
343 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The goal of this observational study is to set up a longitudinal data collection study to perform a long-term follow-up of SMA patients in a real-world setting, and to standardise and homogenize the data collection process for SMA patient's data. Treated and untreated patients will be followed based on the routine clinical practice schedule.
CONDITIONS
Official Title
CuidAME: Longitudinal Data Collection From Patients With Spinal Muscular Atrophy in Spain
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Genetically confirmed 5q SMA
- Written informed consent obtained from patient or caregiver (except for deceased pediatric patients)
You will not qualify if you...
- SMA types other than 5q SMA
- Patients without legal capacity who cannot understand the nature, significance, and consequences of the study
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Hospital Sant Joan de Déu
Esplugues de Llobregat, Spain
Actively Recruiting
Research Team
C
CUIDAME Project Manager
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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