Actively Recruiting
Data Collection Protocol for Patients With Von Hippel Lindau Disease
Led by M.D. Anderson Cancer Center · Updated on 2025-11-20
125
Participants Needed
1
Research Sites
175 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
To collect information from patients with vHL disease. Information collected will include data on the status of the disease, any surgeries or therapies patients have received for vHL disease, and quality of life.
CONDITIONS
Official Title
Data Collection Protocol for Patients With Von Hippel Lindau Disease
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Presence of genetic confirmation or clinical criteria consistent with vHL disease.
- Ability to understand and the willingness to sign a written informed consent document.
You will not qualify if you...
- Patients with psychiatric illness or social situations that would limit compliance with study requirements.
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
M D Anderson Cancer Center
Houston, Texas, United States, 77030
Actively Recruiting
Research Team
E
Eric Jonasch, MD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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