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ID04717349

Observational Data Collection Study on Pediatric and Adolescent Gynecologic Conditions and Family Members to Improve Understanding

Led by Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) · Updated on 2026-08-06

11000

Participants Needed

1

Research Sites

N/A

Total Duration

AI-Summary

What this Trial Is About

Researchers are collecting long-term data from children, teenagers, and adult family members who have known or suspected gynecologic conditions related to the reproductive system. These conditions include reproductive gland disorders, tumors, and congenital anomalies. The study aims to create a large database to improve understanding of pediatric and adolescent gynecologic PAG disorders. Participants will receive standard clinical care and will not be given experimental drugs or treatments as part of this observational study. Researchers will review medical records, conduct medical histories and physical exams, and collect biological samples such as blood, saliva, and optional vaginal swabs for genetic and other research tests. If participants undergo related surgery, tissue samples may also be collected for future study. Optional surveys about physical and emotional health may be completed. Throughout the study, researchers will gather medical data from routine tests like blood and urine tests, scans, and other clinical procedures. Participants health and medical information will be monitored over time to build a comprehensive database of PAG conditions. The study is ongoing and participants may be followed for extended periods to help improve knowledge about these conditions.

CONDITIONS

Brief Title

Data Collection Study of Pediatric and Adolescent Gynecology Conditions

Research Team

V

Veronica Gomez-Lobo, M.D.

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