Actively Recruiting

Phase Not Applicable
Age: 18Years +
All Genders
NCT04751435

Developing New Educational Materials About Genetic Testing for a Diverse Group of Cancer Patients

Led by Memorial Sloan Kettering Cancer Center · Updated on 2025-10-21

445

Participants Needed

4

Research Sites

249 weeks

Total Duration

On this page

AI-Summary

What this Trial Is About

Genetic testing is a type of test that detects changes to the genes-the DNA instructions that are passed on from the mother and father. The results of a genetic test can confirm whether the participant has a genetic disorder, which is a disease caused in whole or in part by changes to the genes. Genetic testing can also help determine a person's chance of getting or passing on a genetic disorder. Genetic tests use a sample of blood, hair, skin, or other tissue, and they can look at one gene or multiple genes at the same time. Genetic testing may change the options for treating people with certain types of cancer. For example, some medications are more helpful for the treatment of cancer in people with certain gene changes (mutations). The researchers are doing this study to develop new educational materials about genetic testing for people who speak different languages and have diverse cultural and educational backgrounds. During the study, the staff will interview participants with diverse cultural and educational backgrounds and ask them to review a sample of the educational materials that have been developed so far. Participants will give their opinions on these materials, and the researchers will use participants' feedback to improve the materials.

CONDITIONS

Official Title

Developing New Educational Materials About Genetic Testing for a Diverse Group of Cancer Patients

Who Can Participate

Age: 18Years +
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Age 18 years or older
  • Current or previous diagnosis of breast, ovarian, pancreatic, or prostate cancer (Phase 1) or breast, colorectal, ovarian, pancreatic, or prostate cancer meeting specific criteria (Phase 2)
  • Self-identify as Black, Latino, or neither Black nor Latino (Phase 1)
  • Fluency in English, Haitian Creole, or Spanish with good spoken and reading ability
  • No prior cancer genetic counseling or germline testing for cancer risk (Phase 2)
Not Eligible

You will not qualify if you...

  • Impaired decision-making capacity as judged by a clinician or consenting professional
  • Fluency level of "not at all" or "not well" in required languages

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Trial Site Locations

Total: 4 locations

1

Kings County Hopsital Center

Brooklyn, New York, United States, 11203

Actively Recruiting

2

Queens Cancer Center of Queens Hospital

Jamaica, New York, United States, 11432

Actively Recruiting

3

Memorial Sloan Kettering at Ralph Lauren Center (Limited Protocol Activities)

New York, New York, United States, 10035

Actively Recruiting

4

Jamaica Hospital Medical Center (Data Collection Only)

Richmond Hill, New York, United States, 11418

Actively Recruiting

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Research Team

J

Jada Hamilton, PhD, MPH

CONTACT

J

Jennifer Hay, PhD

CONTACT

How is the study designed?

Study Type

INTERVENTIONAL

Masking

NONE

Allocation

RANDOMIZED

Model

PARALLEL

Primary Purpose

HEALTH_SERVICES_RESEARCH

Number of Arms

3

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