Actively Recruiting
Developmental and Epileptic Encephalopathy of Genetic Etiology: Natural History Through Reuse of Clinical Data
Led by Imagine Institute · Updated on 2025-06-29
400
Participants Needed
23
Research Sites
113 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
Developmental and Epileptic Encephalopathy (DEE) are a heterogeneous group of neurodevelopmental disorders linked to both epilepsy and its underlying etiology, independently of epileptiform activity. The creation of a database with retrospective follow-up of a large number of patients on a national scale will enable better knowledge of specific biomarkers, and thus a better classification and understanding of the natural evolution of DEE according to their etiology. This will enable better, more personalized therapeutic management of patients, depending on etiology and the presence or absence of these biomarkers. The investigators will also be able to draw up management recommendations, which are currently non-existent.
CONDITIONS
Official Title
Developmental and Epileptic Encephalopathy of Genetic Etiology: Natural History Through Reuse of Clinical Data
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Diagnosis of Developmental and Epileptic Encephalopathy
- Registered with or benefiting from a social security scheme.
You will not qualify if you...
- Opposition of the patient or his/her parents to the re-use of data in the context of this study
- Person subject to a safeguard of justice measure
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 23 locations
1
CHU Amiens
Amiens, France
Not Yet Recruiting
2
CH Angers
Angers, France
Not Yet Recruiting
3
Chu Besancon
Besançon, France
Not Yet Recruiting
4
CHU Bordeaux
Bordeaux, France
Not Yet Recruiting
5
CHRU Brest
Brest, France
Not Yet Recruiting
6
CHU Clermont-Ferrand
Clermont-Ferrand, France
Not Yet Recruiting
7
CHU Grenoble
Grenoble, France
Not Yet Recruiting
8
CHU Lille
Lille, France
Not Yet Recruiting
9
CHU Limoges
Limoges, France
Not Yet Recruiting
10
CHU Lyon HCL
Lyon, France
Not Yet Recruiting
11
Assistance Publique Hopitaux de Marseille
Marseille, France
Not Yet Recruiting
12
CHU de Nancy
Nancy, France
Not Yet Recruiting
13
Hopitaux Pediatriques de Nice CHU Lenval
Nice, France
Not Yet Recruiting
14
Necker-Enfants Malades Hospital
Paris, France, 75015
Actively Recruiting
15
CHU Pitié Salpétrière
Paris, France
Not Yet Recruiting
16
CHU Robert Debré
Paris, France
Not Yet Recruiting
17
Hôpital Armand Trousseau
Paris, France
Not Yet Recruiting
18
Chu Reims
Reims, France
Not Yet Recruiting
19
CHU Rennes
Rennes, France
Not Yet Recruiting
20
CHU Strasbourg
Strasbourg, France
Not Yet Recruiting
21
CHU Toulouse
Toulouse, France
Not Yet Recruiting
22
CHRU Tours
Tours, France
Not Yet Recruiting
23
Hôpital André Mignot (CH Versailles)
Versailles, France
Not Yet Recruiting
Research Team
R
Rima Nabbout, Pr
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
2
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