Actively Recruiting
Diagnostic Journey, Patient Experience, and Disparities in the Treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System
Led by Medstar Health Research Institute · Updated on 2026-01-16
200
Participants Needed
1
Research Sites
63 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
Evaluate the diagnostic journey, patient experience, and disparities in the treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System.
CONDITIONS
Official Title
Diagnostic Journey, Patient Experience, and Disparities in the Treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Diagnosed with Spinal Muscular Atrophy (SMA)
- Age 18 years or older
You will not qualify if you...
- Deceased
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
MedStar Health Research Institute
Washinton, District of Columbia, United States, 20010
Actively Recruiting
Research Team
G
Gabrielle Edwards, BS
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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