Using a Digital App to Monitor Speech and Health in People with Dementia, Motor Neuron Disease, Multiple Sclerosis, and Parkinsons Disease
Led by University of Edinburgh · Updated on 2025-09-18
150
Participants Needed
1
Research Sites
N/A
Total Duration
AI-Summary
What this Trial Is About
Researchers are studying speech problems in people living with neurodegenerative conditions such as dementia, motor neuron disease MND, multiple sclerosis MS, and Parkinsons disease PD. This research aims to use digital technologies, like smartphone apps, to record and analyze speech in detail. The goal is to help diagnose and monitor these conditions by comparing speech data from people with these diagnoses to those without any neurological condition.
The study uses a digital platform co-developed with people affected by neurodegenerative disorders to collect speech data. Participants include people diagnosed with dementia, MND, MS, or PD, as well as healthy volunteers and relatives or carers without neurological diagnoses. Researchers will gather acoustic speech data and apply machine learning to analyze speech patterns such as rhythm, intonation, and fluency without focusing on the spoken text. They will compare these digital speech measures to current clinical standards.
Participants will provide speech samples using the digital app, and their data will be linked to detailed clinical registries. The study will assess how feasible and acceptable this digital speech monitoring is for clinical care and research. Researchers will create a repository of voice samples for future research collaborations. The studys main and secondary outcomes will be measured over 24 months, with ongoing data collection and analysis during this period.
CONDITIONS
Brief Title
Digital App for Speech & Health Monitoring
Research Team
C
Christine R Weaver, MSc
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A person diagnosed with Motor Neuron Disease, Dementia, Multiple Sclerosis, or Parkinson's Disease
A relative or carer of someone with the above diagnoses who does not have a neurological condition
A healthy volunteer without a neurological condition
At least 16 years old
You will not qualify if you...
Younger than 16 years old
Significant uncorrected vision or hearing problems that prevent use of the app
Unable to give informed consent due to cognitive impairment or lack of understanding of the study and app use
Your Study Journey
Screening
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
1 visit (in-person or remote)
Monitoring
Duration - Up to 24 months
Participants provide speech data through a digital app to monitor neurodegenerative conditions or as healthy controls. Data collection supports early detection, monitoring, and stratification of these disorders.
Periodic data collection via digital app as instructed
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
5
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Published Research Related To This Trial
Digital App for Speech and Health Monitoring Study (DASH): protocol for a prospective longitudinal case-control observational study for developing speech datasets in neurodegenerative disorders and dementia.
Johnny Tam, Christine Weaver, Amarachi Ihenacho...