Actively Recruiting
Digital Delivery of Person-centered Transitional Care
Led by Göteborg University · Updated on 2025-02-12
100
Participants Needed
2
Research Sites
208 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
Advances in medical care have extended the life expectancy of individuals with congenital and pediatric-onset diseases, leading to an increased need for effective transition programs as these individuals move from pediatric to adult healthcare. The STEPSTONES project in Sweden is designed to evaluate the effectiveness of a person-centered transition program to support teenagers with chronic conditions during this transition. The project's innovative digital adaptation, Digi-STEPSTONES, seeks to address challenges related to accessibility and continuity of care by delivering the program remotely. This study will assess the non-inferiority of the digital program compared to traditional, in-person care, focusing on outcomes such as patient empowerment, transition readiness, and quality of life. Additionally, the project will explore the implementation and scalability of the digital transition model across various chronic conditions. Preliminary studies have highlighted the importance of structured, person-centered care in improving empowerment and other outcomes in adolescents with chronic illnesses. The Digi-STEPSTONES project aims to provide crucial evidence for the digital delivery of transition programs, potentially enhancing the accessibility and effectiveness of care for young people with chronic conditions in Sweden.
CONDITIONS
Official Title
Digital Delivery of Person-centered Transitional Care
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Adolescents aged 15 years or older
- Literate and able to speak Swedish
- Diagnosed with asthma/allergy or have undergone solid organ transplantation
- Parents will be invited to complete a proxy questionnaire
You will not qualify if you...
History of severe allergic reactions to study medication Currently pregnant or breastfeeding Recent participation in another clinical trial within the last 30 days Presence of uncontrolled medical conditions that could affect safety
AI-Screening
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Trial Site Locations
Total: 2 locations
1
Queen Silvia Childrens hospital, Sahlgrenska university hospital
Gothenburg, Vastra Gotalandsregionen, Sweden, 416 50
Actively Recruiting
2
Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg
Gothenburg, Sweden, 41674
Not Yet Recruiting
How is the study designed?
Study Type
INTERVENTIONAL
Masking
NONE
Allocation
NON_RANDOMIZED
Model
PARALLEL
Primary Purpose
SUPPORTIVE_CARE
Number of Arms
2
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