UPMC Simmons Center Registry for Adults with Interstitial Lung Disease Collecting Medical Records for Research and Future Studies

What this Trial Is About

This research aims to collect past, current, and future medical records from individuals treated for interstitial lung disease at the UPMC Simmons Center for Interstitial Lung Disease. The goal is to create a research registry that will help investigators better understand interstitial lung disease and its treatment by studying a large collection of patient data. This registry also supports identifying and recruiting patients for future research studies related to this lung condition. Participants provide permission for their medical records to be included in this research registry. There are no specific treatments or interventions as this is an observational study focused on gathering medical information rather than administering therapies. The registry will continuously collect data from the participants records over time. During the study, researchers will review the medical records of participants to answer questions about interstitial lung disease. There are no required visits, procedures, or treatments since the study involves only the collection and analysis of medical data. Participation may continue over many years, with ongoing updates to the registry as new medical information becomes available.

Dorothy P. and Richard P. Simmons Center for ILD Research Registry