Actively Recruiting
The Duchenne Registry
Led by The Duchenne Registry · Updated on 2026-05-08
10000
Participants Needed
1
Research Sites
2087 weeks
Total Duration
On this page
Sponsors
T
The Duchenne Registry
Lead Sponsor
P
Parent Project Muscular Dystrophy
Collaborating Sponsor
AI-Summary
What this Trial Is About
The Duchenne Registry is an online, patient-report registry for individuals with Duchenne and Becker muscular dystrophy and carrier females. The purpose of the Registry is to connect Duchenne and Becker patients with actively recruiting clinical trials and research studies, and to educate patients and families about Duchenne and Becker care and research. At the same time, The Duchenne Registry is a valuable resource for clinicians and researchers in academia and industry, allowing access to de-identified datasets provided by patients and their families-information that is vital to advances in the care and treatment of Duchenne. The Duchenne Registry is a member of the TREAT-NMD Neuromuscular Network.
CONDITIONS
Official Title
The Duchenne Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Diagnosis of Duchenne or Becker muscular dystrophy
- Manifesting female carriers included
- Asymptomatic female carriers included
You will not qualify if you...
- Diagnosis of any other type of muscular dystrophy, including limb-girdle muscular dystrophy
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
The Duchenne Registry / PPMD
Washington D.C., District of Columbia, United States, 20005
Actively Recruiting
Research Team
A
Ann Martin, MS, CGC
CONTACT
L
Lauren Bogue, MS, CGC
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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