Actively Recruiting

Phase Not Applicable
Age: 0 - 17Years
All Genders
NCT06216548

E-PRIME For Children With Medical Complexity

Led by Wake Forest University Health Sciences · Updated on 2026-01-08

909

Participants Needed

1

Research Sites

197 weeks

Total Duration

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Sponsors

W

Wake Forest University Health Sciences

Lead Sponsor

P

Patient-Centered Outcomes Research Institute

Collaborating Sponsor

AI-Summary

What this Trial Is About

Children with medical complexity (CMC) have very high needs for health and support services. CMC have very rare diseases that involve multiple organ systems. As a result, all CMC have multiple chronic conditions and need care from many specialists and services. While there are important benefits to the child and family in living at home, the continuing need for complex medical care places a profound burden on caregivers. Telehealth has long been considered a potential solution to barriers in access to care for children. The purpose of this research is to test whether telehealth can help pediatric primary care providers (PCPs) as they treat, monitor, and manage children with medical complexity (CMC). Additionally, it is to reduce caregiver and child burden as well as improve care coordination between multiple providers.

CONDITIONS

Official Title

E-PRIME For Children With Medical Complexity

Who Can Participate

Age: 0 - 17Years
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Less than 18 years of age on the date of enrollment
  • Presence of a chronic condition expected to last 12 months or more
  • Needs ongoing care with 4 or more sub-specialists or services OR depends on 1 or more medical technologies such as gastrostomy, tracheostomy, oxygen, or ventilator
Not Eligible

You will not qualify if you...

  • Permanent address outside of North Carolina
  • Living in a long-term care facility
  • Wards of the state, unless caregiver is a legal guardian able to consent
  • Caregivers do not speak English or Spanish

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Trial Site Locations

Total: 1 location

1

Wake Forest University Health Sciences

Winston-Salem, North Carolina, United States, 27157

Actively Recruiting

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Research Team

S

Savithri Nageswaran, MD

CONTACT

M

Madeleine Nieto, MPH

CONTACT

How is the study designed?

Study Type

INTERVENTIONAL

Masking

NONE

Allocation

RANDOMIZED

Model

PARALLEL

Primary Purpose

SUPPORTIVE_CARE

Number of Arms

2

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