Actively Recruiting
The Ear-Nose-Throat (ENT) Prospective International Cohort of PCD Patients (EPIC-PCD)
Led by University of Bern · Updated on 2025-12-02
1000
Participants Needed
1
Research Sites
1082 weeks
Total Duration
On this page
Sponsors
U
University of Bern
Lead Sponsor
B
Bicetre Hospital
Collaborating Sponsor
AI-Summary
What this Trial Is About
The Ear-Nose-Throat (ENT) Prospective International Cohort of patients with Primary Ciliary Dyskinesia (EPIC-PCD) is a prospective observational clinical cohort study, set up as a multinational multi-centre study. It is embedded into routine patient care of participating reference centres for PCD and patients keep being managed according to local procedures and guidelines.
CONDITIONS
Official Title
The Ear-Nose-Throat (ENT) Prospective International Cohort of PCD Patients (EPIC-PCD)
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Diagnosis of Primary Ciliary Dyskinesia (PCD) confirmed by clinical and test criteria
- Patient must have an ENT examination at least once a year as part of routine follow-up
You will not qualify if you...
History of severe allergic reactions to study medication Currently pregnant or breastfeeding Recent participation in another clinical trial within the last 30 days Presence of uncontrolled medical conditions that could affect safety
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
University of Bern
Bern, Switzerland
Actively Recruiting
Research Team
M
Myrofora Goutaki, MD-PhD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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