Multidisciplinary Educational Program with Nurse Support for Women Living with Endometriosis to Improve Quality of Life

What this Trial Is About

Endometriosis is a chronic condition where tissue similar to the lining inside the uterus grows outside it, causing pain and affecting quality of life in many women of reproductive age. This research evaluates a multidisciplinary educational program combined with nurse-led telephone follow-up to improve the quality of life of women living with endometriosis. The study is supported by the Centre Hospitalier Emile Roux and aligns with public health priorities to offer better care options. The study involves an educational program where patients participate in workshops led by healthcare professionals covering topics like endometriosis, diet, sexuality, pain management, emotions, Pilates, and fertility. Patients in the experimental group will also have monthly nurse-led phone calls for the first six months, then calls at nine and twelve months to monitor symptoms and provide support. Workshops require attending at least three sessions over two days, alongside usual gynecological care. A control group will continue with conventional care without this additional support. Participants will be evaluated at the start, six months, and twelve months through questionnaires measuring quality of life, anxiety, pain, sexual function, sleep, and medication use. Researchers will also assess healthcare visits, hospitalizations, work absences, and supportive care use. The study includes an initial educational assessment with a nurse to set personalized goals and ongoing follow-up to help meet patients evolving needs. Total participation spans at least one year with scheduled assessments and support.

Educational Program for the Multidisciplinary Support of Patients With Endometriosis