Actively Recruiting
Educational Support Group Program for Bilingual and Spanish-speaking Carepartners and People With Progressive Aphasia
Led by University of Texas at Austin · Updated on 2025-03-04
120
Participants Needed
1
Research Sites
340 weeks
Total Duration
On this page
Sponsors
U
University of Texas at Austin
Lead Sponsor
T
The Association for Frontotemporal Degeneration
Collaborating Sponsor
AI-Summary
What this Trial Is About
The current study aims to examine the benefits of an education/support group program for individuals with progressive aphasia (caused by various etiologies, diagnoses) and their carepartners. The current study utilizes pre-, post-treatment, and follow-up assessments to measure effects of a psychoeducational support group and an implementation/communication skills training phase on measures of psychosocial function, communicative effectiveness and speech/language function. Analysis of study-specific surveys and semi-structured interviews will provide qualitative data regarding outcomes. Before beginning the education and support group, focus groups will be run in order to set priorities for the themes to be included in the education program. Participants will join via tele-based means if preferred and these participants may reside in the United States, or internationally including Mexico and Spain.
CONDITIONS
Official Title
Educational Support Group Program for Bilingual and Spanish-speaking Carepartners and People With Progressive Aphasia
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Speak Spanish and/or English
- Identify as Hispanic and/or Latinx or have a spouse/family member with progressive aphasia who identifies as Hispanic and/or Latinx
- See and hear well enough to participate
- Have access to a computer or mobile device with video capability
- Have an internet connection
- For individuals with progressive aphasia: diagnosis of progressive aphasia or language-led dementia with aphasia affecting daily living
- Aware of language difficulties and willing to discuss them
- Able to actively engage in group discussions and complete activities with minimal support
- Able to regularly attend meetings
- Willing to follow support group rules for respectful interaction
- For caregiver support group participants and their partners with progressive aphasia: diagnosis of progressive aphasia or dementia with aphasia affecting daily living
- Some ability to communicate and understand communication for training sessions
- Functionally able to engage in training sessions (maintain attention, minimal disruptive behavior)
- Have a care partner who consents to participate
- Care partners must identify as caregivers of individuals with progressive aphasia or language-led dementia
- Willing to discuss caregiving and attend meetings regularly
- Willing to follow support group rules for respectful interaction
You will not qualify if you...
- No additional exclusion criteria beyond the inclusion criteria listed
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
University of Texas at Austin
Austin, Texas, United States, 78702
Actively Recruiting
Research Team
S
Stephanie M Grasso, PhD
CONTACT
How is the study designed?
Study Type
INTERVENTIONAL
Masking
NONE
Allocation
NON_RANDOMIZED
Model
SINGLE_GROUP
Primary Purpose
TREATMENT
Number of Arms
1
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