Support Group Program for Spanish-speaking and Bilingual Caregivers and People with Progressive Aphasia and Language-led Dementia

What this Trial Is About

This research aims to explore the benefits of an education and support group program for individuals with progressive aphasia caused by various underlying conditions, as well as their carepartners. The study focuses on psychosocial function, communication skills, and speech and language abilities. It includes both a psychoeducational support group and an implementation phase that trains communication strategies. Participants may join remotely, including those living in the United States, Mexico, or Spain. The study offers two participation routes one for individuals with progressive aphasia attending an educational support group, and another for carepartners who join an educational support group followed by a practice and feedback phase involving their partner with aphasia. The first phase consists of twice-monthly group meetings over four months, while the second phase includes weekly training sessions for four weeks. Assessments are conducted before and after each phase, with follow-up evaluations at three months post-treatment. Total participation lasts about nine months. Participants will complete surveys, interviews, and various assessments throughout the study to evaluate treatment acceptability, communication effectiveness, and quality of life. These include cognitive and psychosocial measures, caregiver burden, and depression scales. Study data will be collected at baseline, immediately after treatment, and during follow-up. Participants will engage via telehealth if preferred, and their involvement includes completing homework, attending sessions, and providing feedback about the program.

Educational Support Group Program for Bilingual and Spanish-speaking Carepartners and People With Progressive Aphasia