Educational Support Group Program for Carepartners of Bilingual and Spanish-speaking Persons With Progressive Forms of Aphasia and for Persons With Progressive Forms of Aphasia

What this Trial Is About

This research aims to evaluate the benefits of an educational and support group program designed for individuals with progressive aphasia and their carepartners. The study focuses on people with progressive aphasia caused by various conditions, including Alzheimer's disease and other language-led dementias. It measures how participation in these groups affects psychosocial well-being, communication skills, and speech or language function through various assessments before, during, and after the program. Participants will join one of two group paths: a progressive aphasia educational/support group or a caregiver support group combined with a communication skills training phase involving their partner with aphasia. The caregiver group includes two phases: an educational/support phase with twice-monthly meetings for four months, and a practice phase with weekly sessions for one month. The progressive aphasia group participates only in the educational/support phase. The program is offered via telehealth, allowing participants from the United States and internationally to join. Participants engage in assessments before the program, immediately after each phase, and three months following treatment to track changes in communication, quality of life, mood, and caregiving impact. These include surveys, interviews, and standardized tests such as the Mini-Mental State Exam and Clinical Dementia Rating Scale. Researchers also monitor participation rates, homework completion, and retention. The total study duration is approximately nine months, including follow-up evaluations.

Educational Support Group Program for Bilingual and Spanish-speaking Carepartners and People With Progressive Aphasia