Evaluating a Tourette Syndrome Symptom Management App to Support Parents of Children Aged 6 to 12

What this Trial Is About

Researchers are evaluating a symptom management application designed to help parents of children aged 6 to 12 years with Tourette Syndrome TS. The study aims to improve parental care needs, sleep quality, anxiety levels, quality of life, and the parent-child relationship. This randomized controlled trial compares the effects of the app with traditional outpatient verbal and paper health education guidance. Parents in the experimental group use the TS symptom management app for four weeks, recording their childs tic patterns and treatments at least twice weekly and completing educational readings on TS care. The control group continues receiving standard outpatient verbal and paper-based health education. Questionnaires assessing care needs, quality of life, sleep, anxiety, parent-child relationship, and tic severity are completed before, immediately after, and at one and three months post-intervention. The experimental group also completes a technology acceptance questionnaire during the final follow-up. Participants are asked to complete multiple questionnaires including the Care Needs Scale, WHO Quality of Life, Pittsburgh Sleep Quality Index, Beck Anxiety Inventory, Parent-Child Relationship Quality Inventory, and Yale Global Tic Severity Scale at specified intervals. The study measures changes from baseline to assess the apps impact on parental care abilities and childrens symptom severity. The trial is sponsored by the National Taipei University of Nursing and Health Sciences and runs until July 2026.

Effectiveness of Symptom Management Application on Parental Care Ability of Children With Tourette Syndrome