Actively Recruiting

Phase 2
Age: 28Days - 17Years
All Genders
ID05855083

A Phase 2 Study Evaluating the Efficacy, Safety, Pharmacokinetics, and Pharmacodynamics of Narsoplimab in Pediatric Patients With High-Risk Hematopoietic Stem Cell Transplant Thrombotic Microangiopathy

Led by Omeros Corporation · Updated on 2025-03-25

18

Participants Needed

16

Research Sites

N/A

Total Duration

On this page

AI-Summary

What this Trial Is About

Researchers are evaluating narsoplimab to study its safety and effectiveness in children with thrombotic microangiopathies (TMA) that happen after a hematopoietic stem cell transplant (HSCT). This Phase 2 study focuses on pediatric patients aged from 28 days up to less than 18 years with high-risk HSCT-TMA. The study includes three age groups: infants to under 2 years, children 2 to under 12 years, and adolescents 12 to under 18 years. Participants will receive a single dosing regimen of narsoplimab at 4 mg/kg for 8 weeks. The treatment is given to all participants without a comparison group. After treatment, patients will be monitored and followed for up to 52 weeks to assess longer-term effects and outcomes. During the study, participants will have survival rates evaluated at 100 days and up to one year after diagnosis of high-risk HSCT-TMA. Researchers will monitor adverse events, clinical response, pharmacokinetics, and immune response to the drug. The study involves regular medical assessments and safety monitoring throughout the treatment and follow-up periods, lasting up to one year in total.

CONDITIONS

Brief Title

Efficacy and Safety Study of Narsoplimab in Pediatric Patients With High-Risk Hematopoietic Stem Cell Transplant TMA

Who Can Participate

Age: 28Days - 17Years
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Age at least 28 days and less than 18 years prior to informed consent
  • Informed consent from at least one parent or legal guardian; patient consent if of legal age
  • Assent from patients as required by local law
  • Received allogeneic hematopoietic stem cell transplant for benign or malignant disease
  • Diagnosis of HSCT-TMA with platelet count below 50,000/mL or a decrease over 50% from highest post-transplant value
  • Evidence of microangiopathic hemolysis (schistocytes, elevated LDH, or low haptoglobin)
  • At least one high-risk HSCT-TMA criterion, such as persistence over 2 weeks after modifying calcineurin inhibitors or sirolimus, or evidence of high-risk features including proteinuria, elevated creatinine, biopsy-proven gastrointestinal TMA, neurological abnormalities, effusions, pulmonary hypertension, severe graft-versus-host disease, or elevated serum C5b-9
  • If sexually active and of childbearing potential, agreement to use a highly effective birth control method during treatment and 12 weeks after
  • Male patients must agree to avoid fathering children for 12 weeks after last dose
Not Eligible

You will not qualify if you...

  • Use of eculizumab, ravulizumab, or defibrotide within 3 months prior to consent unless documented therapy failure
  • Presence of Shiga toxin-producing Escherichia coli hemolytic uremic syndrome (STEC-HUS)
  • ADAMTS13 activity below 10%
  • Severe uncontrolled bacterial, fungal, or viral infection requiring antimicrobial therapy
  • Malignant hypertension with specific ocular findings
  • Poor prognosis with life expectancy less than 3 months
  • Pregnancy or lactation
  • Treatment with investigational drug or device within 4 weeks prior to study
  • Abnormal liver function tests with ALT or AST more than 5 times upper limit
  • Positive HIV test unless confirmed negative within 28 days
  • Employment or immediate family relation to study sponsor, research staff, or investigators
  • Known allergy to any study drug components
  • Any condition deemed by investigator to pose risk to patient

AI-Screening

AI-Powered Screening

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Your Study Journey

Screening

Duration - 2 to 4 weeks

Participants are screened for eligibility to participate in the trial.

1 visit (in-person)

Treatment

Duration - 8 weeks

Participants receive narsoplimab treatment to address high-risk HSCT-TMA.

Visits scheduled during the 8-week treatment period

Follow-up

Duration - Up to 44 weeks

Participants are followed for safety and efficacy assessments after treatment ends.

Periodic follow-up visits up to 52 weeks from treatment start

Trial Site Locations

Total: 16 locations

1

Omeros Investigational Site

San Diego, California, United States, 92024

Actively Recruiting

2

Omeros Investigational Site

Gainesville, Florida, United States, 32608

Not Yet Recruiting

3

Omeros Investigational Site

Boston, Massachusetts, United States, 02215

Not Yet Recruiting

4

Omeros Investigational Site

St Louis, Missouri, United States, 63104

Actively Recruiting

5

Omeros Investigational Site

New York, New York, United States, 10065

Not Yet Recruiting

6

Omeros Investigational Site

Valhalla, New York, United States, 10595

Actively Recruiting

7

Omeros Investigational Site

Houston, Texas, United States, 77030

Not Yet Recruiting

8

Omeros Investigational Site

Seattle, Washington, United States, 98105

Not Yet Recruiting

9

Omeros Investigational Site

Halle, Germany

Not Yet Recruiting

10

Omeros Investigational Site

Hanover, Germany

Not Yet Recruiting

11

Omeros Investigational Site

Haifa, Israel

Not Yet Recruiting

12

Omeros Investigational Site

Jerusalem, Israel

Not Yet Recruiting

13

Omeros Investigational Site

Ramat Gan, Israel

Not Yet Recruiting

14

Omeros Investigational Site

Tel Aviv, Israel

Not Yet Recruiting

15

Omeros Investigational Site

Utrecht, Netherlands

Not Yet Recruiting

16

Omeros Investigational Site

Pamplona, Spain

Actively Recruiting

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Research Team

O

Omeros Clinical Trial Information

How is the study designed?

Study Type

INTERVENTIONAL

Masking

NONE

Allocation

NA

Model

SINGLE_GROUP

Primary Purpose

TREATMENT

Number of Arms

1

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