Actively Recruiting
An Electronic Health Record (EHR)-Based Comprehensive Bone and Soft Tissue Tumor Registry
Led by Ohio State University Comprehensive Cancer Center · Updated on 2026-02-11
1500
Participants Needed
1
Research Sites
N/A
Total Duration
On this page
AI-Summary
What this Trial Is About
Researchers are creating a secure electronic health record (EHR)-based registry to collect clinical and research data on rare diseases, specifically bone and soft tissue tumors. This observational study aims to help identify clinical and molecular features related to prognosis and therapy response, encourage collaboration between institutions, and standardize biospecimen collection for biomarker analysis in patients treated and monitored at Ohio State University. Participants will not receive experimental treatments but will be observed as part of routine care. They will complete quality of life questionnaires, and their medical records will be reviewed. Blood samples may be collected for up to two years to support biomarker research. The study facilitates long-term data collection and collaboration to better understand these rare tumors. During the study, participants will provide information through questionnaires and allow access to their medical records. Researchers will monitor outcomes such as overall survival over five years. The study includes ongoing collection of clinical data and biospecimens to support research. Participation duration varies, and there is no interventional treatment provided as this is an observational registry.
CONDITIONS
Brief Title
An Electronic Health Record (EHR)-Based Comprehensive Bone and Soft Tissue Tumor Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Must have a diagnosis or presumed diagnosis of bone or soft tissue tumor as defined by the WHO classification of tumors of soft tissue and bone (4th ed.)
- Patient, or his/her designated power of attorney, must be able to understand and approve of the consent to participate.
You will not qualify if you...
- Prisoners are excluded from participation in the Registry.
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Your Study Journey
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
1 visit (in-person)
Duration - Up to 2 years
Participants are observed through medical record reviews, quality of life questionnaires, and possible blood sample collections to gather data on bone and soft tissue tumors.
Visits as needed for questionnaires and blood sample collection
Trial Site Locations
Total: 1 location
1
Ohio State University
Columbus, Ohio, United States, 43210
Actively Recruiting
Research Team
E
Erin Fetzer
D
David A Liebner, MD
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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