Electronic Registry Study for Adults with Advanced Heart Failure or Heart Transplantation

What this Trial Is About

Researchers are creating an electronic registry of patients diagnosed with Advanced Heart Failure or those who have had a Heart Transplant, tracking cases starting from January 1, 1985. This observational study aims to understand how often these conditions occur and to describe the characteristics of patients facing these serious heart conditions. The study looks at important outcomes like hospitalization due to heart-related causes and death over a five-year period. This study includes both past and ongoing data collection, reviewing information retrospectively and prospectively to gather a comprehensive view of patient experiences. Treatments for heart failure range widely, including medications, lifestyle changes, device implants, and heart transplant surgeries. The study does not assign treatments but collects detailed patient information to evaluate the impact of these approaches and disease progression. Participants will be regularly monitored through their medical records to assess hospitalizations, death events, and other health-related factors like device implantations or need for additional therapies. The study tracks these outcomes over five years to better understand patient health and disease management. Participation involves data collection without altering usual care, and there is no maximum age limit for involvement.

Electronic Register on Advanced Heart Failure and Transplantation di Cuore