Actively Recruiting
ELEVATE, a Registry of Patients With Acute Hepatic Porphyria (AHP)
Led by Alnylam Pharmaceuticals · Updated on 2026-04-27
150
Participants Needed
30
Research Sites
309 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
This global patient registry is being conducted to characterize the natural history and real-world clinical management of patients with AHP, and to further characterize the real-world safety and effectiveness of givosiran and other approved AHP therapies.
CONDITIONS
Official Title
ELEVATE, a Registry of Patients With Acute Hepatic Porphyria (AHP)
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Documented diagnosis of AHP, per physician's determination
You will not qualify if you...
- Currently enrolled in a clinical trial for any investigational agent
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 30 locations
1
Clinical Trial Site
Birmingham, Alabama, United States, 35233
Actively Recruiting
2
Clinical Trial Site
Gilbert, Arizona, United States, 85234
Actively Recruiting
3
Clinical Trial Site
San Francisco, California, United States, 90074
Actively Recruiting
4
Clinical Trial Site
Baltimore, Maryland, United States, 21205
Actively Recruiting
5
Clinical Trial Site
Boston, Massachusetts, United States, 02114
Actively Recruiting
6
Clinical Trial Site
Minneapolis, Minnesota, United States, 55455
Actively Recruiting
7
Clinical Trial Site
New York, New York, United States, 10029
Actively Recruiting
8
Clinical Trial Site
Winston-Salem, North Carolina, United States, 27157
Completed
9
Clinical Trial Site
Oklahoma City, Oklahoma, United States, 73120
Actively Recruiting
10
Clinical Trial Site
Philadelphia, Pennsylvania, United States, 19107
Completed
11
Clinical Trial Site
Galveston, Texas, United States, 77555
Actively Recruiting
12
Clinical Trial Site
Salt Lake City, Utah, United States, 84112
Actively Recruiting
13
Clinical Trial Site
Seattle, Washington, United States, 98195
Actively Recruiting
14
Clinical Trial Site
Brussels, Belgium
Actively Recruiting
15
Clinical Trial Site
Leuven, Belgium
Actively Recruiting
16
Clinical Trial Site
Bordeaux, France
Actively Recruiting
17
Clinical Trial Site
Paris, France
Actively Recruiting
18
Clinical Trial Site
Toulouse, France
Actively Recruiting
19
Clinical Trial Site
Berlin, Germany
Actively Recruiting
20
Clinical Trial Site
Chemnitz, Germany
Actively Recruiting
21
Clinical Trial Site
Würzburg, Germany
Actively Recruiting
22
Clinical Trial Site
Milan, Italy
Actively Recruiting
23
Clinical Trial Site
Modena, Italy
Actively Recruiting
24
Clinical Trial Site
Madrid, Spain
Actively Recruiting
25
Clinical Trial Site
Stockholm, Sweden
Actively Recruiting
26
Clinical Trial Site
Zurich, Switzerland
Actively Recruiting
27
Clinical Trial Site
Taichung, Taiwan
Actively Recruiting
28
Clinical Trial Site
Taipei, Taiwan
Actively Recruiting
29
Clinical Trial Site
Cardiff, United Kingdom
Actively Recruiting
30
Clinical Trial Site
London, United Kingdom
Actively Recruiting
Research Team
A
Alnylam Clinical Trial Information Line
CONTACT
A
Alnylam Clinical Trial Information Line
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
Not the Right Trial for You?
Explore thousands of other clinical trials that might be a better match.
Sign up to get personalized trial recommendations delivered to your inbox.
Already have an account? Log in here